Acne and Accutane historical posts April 1998

Re: Accutane Generic

Posted by Walt Stoll on April 04, 1998 at 07:24:38:

In Reply to: Re: Accutane posted by A.K.G. on April 02, 1998 at 13:54:49:

To all who are struggling with persistant acne:

This has been discussed at great length, right here on this BB, for years. There ARE safer, more effective & less expensive alternatives out there. The problem is not that they do not work but that they take effort on the part of the acne sufferer AND they benefit no one except the patient.

ALL cases of acne have a glandular imbalance behind it. What better example of a glandular imbalance than puberty? Persistance of acne beyond puberty is a glandular imbalance caused by dysautonomia/endocrinopathy which is nearly always caused by the overwhelming stress-effect storage in the hypothalamus that upsets this system & causes so many other chronic conditions. This has been discussed for years in ralationship to many other "incurable" chronic conditions we MDs get rich treating. Most of those other conditions are much more dangerous to people than acne (I suppose the acne people should be grateful) and are determined on the basis of the genetic susceptibility of the individual. Ulcers, Crohn's, hyupertension, arthritis, panic attacks, thyroid conditions, cancer, infertility, etc., etc., are some of the other conditions.

NO "treatment" for persistant acne will last long until the person is willing to learn what I am talking about here and start becoming an expert in the actual causes and what to do about them.

Read everything you can find about acne, accutane and accutane side-effects in the archives. THEN, if you still have questions, write again.

As you get well, you may say what I have heard so many patients say: "I am grateful to my having acne since it forced me to face the causes which would have ruined my life had I not finally heard the message my bodymind was trying to send me. Had one of the "treatments" worked for the acne, I would have successfully shut off the warning signal & gone blithely on my way to the next, louder, message. Besides, I feel so good (a side-effect of any wellness program) & I would never have had THAT experience without the acne forcing me to stop to listen."

I know it is hard to believe that you might bless the acne. However, ALL wise healers in the past have said the same thing: "Illness is an opportunity for learning."

As you get well, I hope you will take the time to share your experiences with us here on the BB. There is only one of me & millions of you out there. Personal experience and testimonials convince more people than I ever could anyhow.

Walt



Re: accutane

Posted by Shirleen Duvel on April 01, 1998 at 00:39:53:


Dr Stoll,

My fiance has just started accutane. How long until he begins to see results. So far his skin looks worse then it did but it is very dry too...Is this normal?

Shirleen


Re: accutane

Posted by no name on April 01, 1998 at 18:35:21:

In Reply to: Re: accutane posted by Shirleen Duvel on April 01, 1998 at 00:39:53:

it works.... give it a few months. dryness is unreal and face can get worse initially, but i'm told (and haven't formed and opinion on) that the acne you get on accutanedoes not scar. I've been on this 3 times w/ about 5 - 6 years in between treatments.


Re: accutane and side effects

Posted by Randy on April 01, 1998 at 19:19:47:

After completing accutane, considerable hair thinning occurred. Is this permanent or temporary? How can I tell?
Is there a certain type of professional who can advise me?
Treatment was completed in September l997 . Thinning occurred after treatment not during treatment.It is now April 1998 and hair texture is not the same. Please advise.



Accutane

Posted by S. K on April 02, 1998 at 01:08:22:

Dr Stoll,
I'm Asian Indian, and have a olive complexion, that tans easily. I have been on acctane for 20 days, and wear a 30 spf sun block, but have noticed my skin has gotten 4 shades darker, it looks like i just came back from a trpoical vacation, my face completely does not match my neck.....is this normal? why have i gotten so hyper pigmented...is this permanent? I'm worried, because everyone is commenting on it.


Re: Accutane

Posted by robert b on April 02, 1998 at 02:58:12:

In Reply to: Accutane posted by S. K on April 02, 1998 at 01:08:22:

Instead of using the wonder drug from the doctors' plethora
of medicines from hell, eliminate iodine and paba from your
diet. Additionally, sun tan daily in moderation or go to a
tanning salon. Ultraviolet light kills bacteria. As a matter
of fact, it is used in hospital ventilation systems along with a hepa filter to kill harmful microorganisms! Also,
use antibacterial soap such as Irish Spring. This works great for bad acne. Once in a while, every two or three days,apply benzoyl peroxide 10%. You'll be very happy and you can tell your doctor to go to hell.- Along with his accutane!!!!!!!!!!!!!!


Re: accutane

Posted by Walt Stoll on April 02, 1998 at 08:59:54:

Dear marie,

Your note is VERY revealing. It tells me that you have only tried conventional, AMA approved, treatments. They were "prescribed".

Next, it seems that you have made up your mind to try the Accutane (another "prescribed" treatment by conventional medicine). You are only asking for replies by people who have used Accutane & had good results. Why? If you have made up your mind, the only thing THIS information will do is make you feel better about it.

When you are ready to quit playing the game you have played so far (without satisfactory results--or you wouldn't still be looking for another magic pill) I would suggest you use the search feature provided with this BB and read everything you can find about acne, accutane and accutane side-effects. I am not criticizing your having played this game because the conventional medical monopoly has a lot riding on keeping their monopoly. They have had more than 100 years to brain-wash the public into thinking: "If you can't trust your doctor, who CAN you trust?" As an MD with more than 30 years of practice experience, I know of what I speak.

THEN, if you still have questions, write again.

Walt


Re: accutane

Posted by Walt Stoll on April 02, 1998 at 09:02:16:

Dear Susan,

Please read the reply I gave to Marie's same question today. If you are only looking for positive results, you are missing the boat.

Walt


Re: Question for Dr. Stoll

Posted by Walt Stoll on April 02, 1998 at 09:08:00:

Dear Steve,

I CAN imagine---since I have seen them for at least 20 years. However, I felt it worthwhile to continue offering the information because it always worked & those who were willing to listen all got well. Those with the incredulous expressions kept their acne until they "grew out of it"--or didn't. They kept going from doctor to doctor looking for the magic pill (which most physicians were happy to give them since that is where the money is). It didn't matter that only rarely did the magic pill do more good than harm.

"You can lead a horse to water-------------------------"

Thanks, Walt


Re: acne and dysautonomia

Posted by Walt Stoll on April 02, 1998 at 09:16:33:

Dear Cindy,

Dysautonomia is not a disease but a condition of your autonomic nervous system no longer being able to maintain a continuous high level of alertness (fight or flight). Our bodies were designed to go on alert when needed & shut off the alert as soon as the situation was over. NOW, most of us have to cope with being turned on all the time. It is like riding your clutch. Eventually it will wear out.

This is simply & completly described in my book along with many of its consequences (link below). It is described in great depth in one of the books I reference in my book: "Mind as Healer, Mind as Slayer" by Dr Pelletier.

Do not go to the medical library for your definition or you will be scared to death. The conventional medical paradigm does not recognize dysautonomia till it is terminal. In effect they are saying that we are perfectly normal until the system totally collapses--without any stages inbetween. Silly! However, our system is still set up so that the sicker the patient is, the more money we make. Why bother doing the thinking needed to discover this trend before the patient is terminal?

Once you have the above information under your belt, if you still have questions, write again.

Walt


Re: accutane

Posted by Beth on April 02, 1998 at 10:43:34:

I began exactly one month ago. I am 28 and just gave birth to a baby girl. I have never had acne in my life. Right after I gave birth it is so sever...sometimes you can hardly recognize me. The worst thing about accutane is I flared more. Everyone tells me this drug will do the trick for me. Any input?


Re: accutane

Posted by Susan Q. on April 02, 1998 at 11:13:52:

In Reply to: Re: accutane posted by Beth on April 02, 1998 at 10:43:34:

Beth,

I started one week ago. According to my doctor plus other people I have talked to who have known others on it is supposed to be quite good. Understandably you have some effects but to the degree it varies with everybody. I am 29 and have tried everything else that could possibly be prescribed by my Doctor. Sometimes a product would work but then after a couple of months it would stop working and then never work again. Accutane is my last resort but to be honest I am glad to be on it. I hope it works for me. Please respond!



Re: accutane

Posted by Susan on April 02, 1998 at 11:18:29:

In Reply to: Re: accutane posted by no name on April 01, 1998 at 18:35:21:

I hope it works I started it a week ago. Like I said to Beth you have to expect some side effects. I have talked to others who have been on it and they have had good results. Everybody is different of course and if it doesn't work for me in the next three months, what can I do? I just have to live with it and that's that. But its worth a shot.



Re: Accutane

Posted by A.K.G. on April 02, 1998 at 13:54:49:

In Reply to: Accutane posted by S. K on April 02, 1998 at 01:08:22:


S.K.,

I'm also an Asian Indian with a medium colored skin tone. I had used Accutane for about a month and a half and it actually made my skin pale. It was working really well for my acne but I had to quit taking it because it caused major muscle and joint pains. I might try retaking it during the summer. As far as your skin pigmenting goes, I would say that avoid the sun as much as possible while on Accutane. For some folks even strong sun-blocks are not enough to prevent a reacton of some sort. Also make sure that the sunscreen you are using contains at least one or more of the following active ingredients: titanium dioxide, avobenzone or zinc oxide. Also usually this sort of pigmentation is not permanent and it ought to start going away once you are done with the Accutane. I would suggest talking to your dermatologist and see what he or she has to say. If this pigmentation problem is really bothering you than you would probably want to get off the Accuatne. Well, good luck.



Re: Accutane

Posted by debbie on April 03, 1998 at 10:23:42:

In Reply to: Accutane posted by S. K on April 02, 1998 at 01:08:22:

Have you thought about using more natural products for your skin problems? I have been using Evening Primrose Oil and zinc for about the last 5 months and I'm seeing great results. It took about 6 weeks before I began to see results but now my skin is looking great! Plus I don't feel like I'm dumping unnatural products into my body. I also was offered accutane from my dermatologist but because of the side effects I was not at all interested. Do some research on Gamma Linolenic Acid (GLA) and you may find a product you will be happy with. Good luck.



Re: acne and dysautonomia

Posted by debbie on April 03, 1998 at 10:40:28:

With all due respect to Dr. Stoll, and I will admit that I am NOT a doctor, but you probably are just having a horomonal reaction to giving birth. Try using natural products, i.e., Evening Primrose Oil, zinc, and even aloe as a topical cure. I have used a product topically called Metro Cream that my dematologist recommended and have seen some good results. However, I prefer to stick with more natural cures. Do some research on gamma linolenic acid (GLA). Maybe just getting your body back to normal after childbirth will regulate your complexion and make you feel better too!



Re: accutane

Posted by Beth on April 03, 1998 at 11:36:55:

In Reply to: Re: accutane posted by Susan Q. on April 02, 1998 at 11:13:52:

Susan:

I assume they warned you about the possibility of your acne getting worst in the beginning. I think that has probably been the worst part about the treatment. You start to take a drug and expect to see positive results. But I am hanging in there and praying that my initial flare-up is over. Some areas of my face appear to be clearing. I probably look the best today than I have in six weeks. This whole acne experience has been pretty bad for me since I never had acne in my life. I just look at my little girl and tell myself that it was worth it since she is perfect in every way. I tell myself that this is temporary. My cousin is 26 and just ended her treatment on accutane. She was battling acne for 5 years and she looks great. She told me it took three months for her skin to be totally clear and then she remained on accutane for 2 more months. I pray I only have 8 weeks until I'm totally clear. Is your acne all over your face? How long have you been battling it? Isn't this stuff suppose to happen to teenagers...not the almost 30 something crowd? Please be sure to write back. Have a good weekend.


Re: accutane

Posted by Walt Stoll on April 03, 1998 at 12:19:08:

In Reply to: Re: accutane posted by Shirleen Duvel on April 01, 1998 at 00:39:53:

Dear Shirleen,

Only the prescribing physician can answer these questions for any individual. If you want to know why AND the answers to your questions, use the search feature provided with this BB & read everything you can find about acne, accutane & accutane side-effects.

THEN, if you still have questions, write again.

Walt


Re: accutane

Posted by Susan on April 03, 1998 at 13:16:49:

In Reply to: Re: accutane posted by Beth on April 03, 1998 at 11:36:55:


Beth, I have had problems with my skin breaking out since I was in my early teens. My doctor has prescribed stuff and it never works long or doesn't work at all. This is my last resort. Luckily with my skin I don't have any scarring from previous breakouts, Thank God! I have been on accutane for a week and my skin has definently slowed down since I started taking it. My skin in the past has been very oily, like you can see an oily sheen on my skin by lunchtime. So I am pretty sure accutane will help me with this. At this point my lips are very dry so I have to overdose on the vaseline which helps. How about you?

I know what your saying about the age thing. I am 29 and my skin breaks out like a teenager would. I kept hoping with age my skin would be less oily but if anything it seemed like it would break out more. If accutane doesn't work then i guess i will have to just wait with age. You know, if my skin just broke out once a month like a lot of women I would be okay with that but it doesn't. My skin is propably totallly clear only about 4 days a month, so its just the opposite. Please respond.

Have a good weekend as well.


Re: accutane and side effects

Posted by Walt Stoll on April 03, 1998 at 13:57:16:

In Reply to: Re: accutane and side effects posted by Randy on April 01, 1998 at 19:19:47:

Dear Randy,

ONLY YOUR PRESCRIBING DOC CAN TELL YOU! If you want to know why and how to find out, use the search feature for this BB & read everything you can find about accutane and accutane side-effects.

THEN, if you still have questions, write again. We have discussed thsi many times right here on this BB.

Walt


Re: Accutane

Posted by robert b on April 03, 1998 at 14:16:32:

In Reply to: Re: Accutane posted by debbie on April 03, 1998 at 10:23:42:

INteresting how few doctors will ever tell you that even if
you apply medication topically rather than orally, topical acne medication is still absorbed into your bloodstream due
to the fact that the dermal layer of your skin, just below the epidermis, is provided with blood circulation and is LIVING tissue. Of course you know it is ?safe? due to all the animal!!!!!!! testing. If it is safe for monkeys, it must be safe for humans. Makes a whole load of sense.


Re: Accutane

Posted by Walt Stoll on April 04, 1998 at 06:54:37:

In Reply to: Accutane posted by S. K on April 02, 1998 at 01:08:22:

Dear S.K.,

ONLY the prescribing physician can answer this for you. To learn WHY this is as well as learning how you can find some of what you seek for yourself, use the search feature for this BB & read everything you can find about acne, accutane and accutane side-effects.

If you had no alternatives, I can understand why you might give accutane a try. It is not that you do not have alternatives but that conventional medicine does not offer them.

THEN, if you still have questions, write again.

Walt



Re: accutane

Posted by Irene on April 04, 1998 at 08:30:26:

In Reply to: Re: accutane posted by Susan on April 03, 1998 at 13:16:49:


I have an appointment with a dermatologist in about a month. I would like to get on accutane but I'm a little nervous about side effects I've heard about. What are the worst side effects you experienced? I'm desparate enough to tolerate some side effects. I've battled acne all my life and have tried EVERYTHING. How long would I have to be on accutane? Are the results long lasting? I would appreciate any response.

Thank you!


Re: accutane

Posted by Beth on April 04, 1998 at 09:36:59:

In Reply to: Re: accutane posted by Susan on April 03, 1998 at 13:16:49:

Susan:

My lips are dry also. I find that vaseline is too glumpy. I am using something called Softlips. I found it at the pharmacy. It is a little waxy...but it does the job. My skin is actually starting to look a little better. My husband and I monitor it daily. My heart goes out to you for fighting acne for so long. Since I have never had acne in my life this has been devestating. They think it is because of the high hormones in pregnancy. The doctors say that acne is common in pregnancy...but none of my doctors have ever seen someone breakout so bad.

This drug has got to do the trick...did your doctor show you the photos of people that have used accutane? Some of those photos are really bad.

Luckily I haven't had any dangerous side effects. My skin is dry and the lip thing but my contacts aren't bothering me thank God!

Please write back!


Re: accutane

Posted by susie on April 04, 1998 at 10:02:45:

In Reply to: Re: accutane posted by Beth on April 04, 1998 at 09:36:59:

It is so interesting to hear comments from other women with acne. I have been battling it for years now and I am 32 years old. It just keeps getting worse with age. And yes, I too thought it was supposed to get better with age but I have 3 other friends that have the same problem that I do. I truely think it must be something in our lifestyles these days but who knows. You commented that if you only broke out once a month you could live with that, well let me tell you, I use to break out the week before my period and they were so cystic that it took the rest of the month for them to heal. So believe me its not like you have a clear face for 3 weeks out of the month! Just as you think its looking better its time to break out again. I took a 5 month dose of accutane last year and about six months after I was done I started breaking out again. So as of yesterday I am starting a second treatment. I was surprised to read on the lable that it is fairly common to need two treatments. I hope this takes care of it. Pretty frustrating to be in your 30's and look worse than the teens. You know any other adult who has never suffered this must wonder why you don't take better care of yourself or some stupid thing! Ugh! Good luck to everyone!



Re: accutane and side effects

Posted by miles kelly on April 04, 1998 at 10:37:40:

i have been experiencing a very red face since taking accutane.my face feels burned. i use moisturizer three times a day.

sometimes its like i feel the heat rise up into my face and then its red and burning.

anybody have any thoughts on this?


Accutane

Posted by J L R on April 04, 1998 at 15:03:11:

I have been on the drug for almost four weeks now and have yet to see any sign of improvement. My condition has actually gotten worse. I am severely dried up, especially on my lips. When should these side effects stop and when should I start noticing a differece?
Thanks
J L R


Re: acne and dysautonomia

Posted by Walt Stoll on April 05, 1998 at 11:15:05:

In Reply to: Re: acne and dysautonomia posted by debbie on April 03, 1998 at 10:40:28:

Dear Debbie,

The second most common cause of hormonal imbalance (after puberty) IS pregnancy. You are just substantiating what I have been saying about ANY persistance of acne beyond puberty (or more than a couple of months following pregnancy) is ALWAYS due to a hormonal imbalance OTHER THAN pregnancy or puberty.

Since the third most common cause of hormonal imbalance is PATHOLOGICAL (other than physiological as is pregnancy & puberty) it behooves those treating these patients to know what causes THAT imbalance.

Walt


Natural Cures

Posted by Debbie on April 05, 1998 at 17:24:02:

I have become a great advocate of natural cures for common health problems, i.e. acne, horomonal difficulties, fatigue, colds, etc. My favorite remedies are Evening Primrose Oil, Aloe, Vitamin C, zinc, Vitamin E, Pau d'Arco tea, and so on. I saw from one of your responses that you are involved in holistic medicine. How do you feel about getting your patients and the people who read this web page more interested in natural medicines instead of manufactured ones. I hadn't noticed you mentioning it in any of your responses.


Re: accutane

Posted by Walt Stoll on April 06, 1998 at 10:50:01:

In Reply to: Re: accutane posted by susie on April 04, 1998 at 10:02:45:

Dear Susie,

Any COMPETENT physician KNOWS that any acne continuing past puberty is due to a pathological endocrinological imbalance. Covering up the acne only cuts the alarm wires of a much more serious underlying condition. Your body is trying to send you a message.

World wide, the approach to resolving this is known. The conventional medical monopoly in this counrty has done everything it could to wipe out any approach to thinking about health EXCEPT allopathy which is now recognized by an increasing % of professionals as being INCAPABLE of resolving chronic conditions.

When you are ready to learn how to get on with your life WITHOUT ACNE, use the search feature for this BB & read everything you can find about acne, accutane & accutane side-effects.

THEN, if you still have questions, write again.

Walt


Re: accutane

Posted by Susan on April 06, 1998 at 12:52:36:

In Reply to: Re: accutane posted by Irene on April 04, 1998 at 08:30:26:

Irene, Some of the side effects are dry lips, dry eyes, can't get pregnant at all during the treatment or three months after treatment. It is a personal decision to go on Accutane and you have to listen to what your doctor says and then decide. I found that being 29 and my skin breaking out more than it did when I was a teenager is what pushed me to go on accutane. Honestly, I am glad to be on it because this is my last resort as i've tried everything else outthere.



Exzemma and acne gone!

Posted by Shelly R on April 07, 1998 at 13:12:01:

Found this BB in mid Jan. Started applying what I had learned from This BB, Dr Stoll's Book , Beth's The Healing Power from Whole Foods, and The Skilled Relaxation Wookbook.
For me I decided to gradually alter my lifestyle instead of trying to so everthing at once and be overwhelmed. Mid Feb I first started removing simple sugars out of my diet and doing deep breathing isometric exercises. Then I began an arobic class that also does strenghtening and conditiong. I then added walking each mornig 20 - 60 mins. I have not inplemented the skilled relaxtion twice a day yet. Will start adding it in about a week.

The first of March I had a flare up of Exzema and of course went to the dermotologist. Was given a steriod cream and instructed to stop shoering and bathing every day. I informed my dermotologist I was beginging to take simple sugars out of my diet and would be eating more whole grain foods. He looked at me like I was crazy. I am not for sure if he just didn't have a clue ( they don't get much education on nutrition in med school) or if he just seen the $ signs disappearing. I returned for a follow up to day. The main reason I went was to show him how the Exzema was completly gone. When I reminded him of my change in diet he laughed and said " You mean you are trying to tell me that remobving sugar has cleared thios up" "Yes I replied" I briefly tried to explain how sugar puts strees on our bodys any way on mine. HE then replied " if this is the case you are going to put me out of business"
( If i were a doctor who was in business for the healing and to help others I would be overjoyed if I were put out of business. What greater pleasure could you receive?) Then he asked how my acne was doing. He looked at my face as I told him great. I was not using any topical or oral medications. He commented on how good my skin looked. The only time he said that is the two times I was on acutane. He prceeded to say I 've seen you and treated you in the past ten years and you know you have flare ups. I wouldn't be suprised to see you this fall. to bad he is basing my future on my past. I told him I would pass the good news to him through my dad who sees him for skin cancer checks. I have no plans on having a reason to see him again. I know we can't change the world of western medicine over night but if we take a stand and just pass it on one person at a time. The proff of this healing is by practicing it and sharing it with others. More will believe
by seeing the changes or hearing of the changes in ourselves. And for those who still don't believe they probably are looking for a qucik fix or some one else to do it for them. Or they are looking for a finiacial gain.

By the way I also notice I no longer have dark circles or puffy bags under my eyes!

Here's to better health and pass it on
Shelly


Re: accutane

Posted by Margie on April 07, 1998 at 20:53:32:

In Reply to: Re: accutane posted by Susan on April 06, 1998 at 12:52:36:


My doctor recently recommend this accutane to me. I would like to know if after I finish taking this can will I be able to have children. Because my mother saw a report on accutane that caused a lot of women problems like not having babies and going into depression that couple of people die from this. Can you please give me your feedback on accutane. Do I have to take this for many years or just couple of months.
thank You,
Margie


Re: Accutane

Posted by Shelly R on April 07, 1998 at 23:27:40:

In Reply to: Re: Accutane posted by robert b on April 02, 1998 at 02:58:12:

Roberet,

First of all I can't believe you would recomend tanning in any form. Not only does it increas your chances for skin damage or cancer but it makes your skin look like leather. I am a make up artist and I can tell the ones who tan and the ones who don't. It's not the bacteria on the skin that is the real problem. It is having the hereditary factor and the stress we have on our body. And from a former acne pron person Some people may find going out in the sun only makes the problem worse. If you want to get down to the
real problem that causes the acne read Dr stoll's book learn about nutrition, and relaxation. We may be born with the factor to have acne but we don't have to allow it to happen. I have found that altering my life style was easier than apply and taking medication for the rest of my life. And I have no stress worring if the acne is coming back.

God Bless
Shelly


Re: accutane

Posted by Walt Stoll on April 08, 1998 at 13:43:34:

In Reply to: Re: accutane posted by Margie on April 07, 1998 at 20:53:32:

Dear Margie,

ONLY YOUR PRESCRIBING DOC CAN ANSWER THIS FOR YOU SINCE EVERYONE RESPONDS DIFFERENTLY. Why do you think this drug is available by prescription only? The doc is not just supposed to write the prescription & run with the money. S/he is supposed to do a complete history, physical & laboratory workup on you BEFORE prescribing it. THEN, s/he will be able to answer your question.

If you will use the search feature for this BB and read everything you can find about acne, accutane and accutane side-effects, you will find out how to learn a lot more for yourself AND why the only person who CAN answer this is your doc. Has s/he done a good job for you?????

Walt


Re: accutane

Posted by Sean on April 08, 1998 at 15:07:46:

In Reply to: Re: accutane posted by Susan on April 03, 1998 at 13:16:49:

I've had acne for about three years, but I'm still 16 and the way my dermotologist has put it, i have years to go. Frankly, I don't want those years and the three years I've had acne it's been enough. I've been taking Retin-A, Cleocin T, Benzamycin, Tetracycline, and Dynacin. I'm now starting to get impatient and I've always been a pretty patient person. My skin is very noticeable and I want at least some of my high school years where my skin is clear. But I'm still young yet and I guess I shouldn't let it get me down but I really hate.
My old dermatologist wanted to put me on accutane but once my parents saw the affects it can have they said "no way!" and I started going to a new dermatologist and I've been seeing better results. I don't know if my skin is that bad but I think it is sometimes. Is accutane worth taking the risks?


Re: Accutane

Posted by Walt Stoll on April 08, 1998 at 16:42:36:

In Reply to: Re: Accutane posted by Shelly R on April 07, 1998 at 23:27:40:

Thanks, Shelly.

I is clear comments like this that do more good than much of what I can say. So many people are used to being led around by the nose by MDs that lay comments like yours many times mean more than any MD's.

Thanks for your help!

Walt


Re: Eczema and acne gone!

Posted by Walt Stoll on April 09, 1998 at 13:34:13:

In Reply to: Exzemma and acne gone! posted by Shelly R on April 07, 1998 at 13:12:01:

Dear Shelly,

Thanks for the testimonial. Your sharing this information will do more to convince people, that they DO have alternatives, than anything I can say. I appreciate your help in helping other people!

Since you are dealing with the causes, your elimination of the dark circles under your eyes is just another example of what I have been saying about how all this stuff is interconnected. Congratulations. You will be seeing other unexpected improvements as you go along.

What you are doing is DEFINITELY bad for your doc's business. Your last sentence says it all. What if everyone knew what you will know when this is all over? Everyone could tell everyone else and where would the AMA be then?

By the way, don't be surprised if you have a few more flareups before this is over. Since you have kind of eased into this, you can expect that risk for about the next 2 years. However, each flareup will be less severe and not last as long as your previous experience.

Getting the skilled relaxation going will greatly accelerate your progress.

Walt



Re: accutane

Posted by Walt Stoll on April 10, 1998 at 09:56:37:

In Reply to: Re: accutane posted by Sean on April 08, 1998 at 15:07:46:

Der Sean,

If there were a simple approach, everyone would be using it. There IS a solution but it requires your becoming an expert AND doing something about the causes. That takes work.

If you think you are ready to put in that kind of effort, use the search feature for this BB & read everything you can find about acne, accutane and accutane side-effects. THEN, if you still have questions, write again.

Walt


Re: Accutane

Posted by aya johns on April 10, 1998 at 12:30:22:

In Reply to: Re: Accutane posted by Walt Stoll on April 06, 1998 at 11:20:59:

Dr. Stoll,
I was hoping to gain some insight into the adverse side effects of Accutane by reading your responses to questions posted by worried people, but your standard reply has been...see your doctor, read all you can on Accutane. Duh! That's why we're all here!! Hoping YOU can offer some insight!


Re: Accutane

Posted by Kyra Kitts on April 10, 1998 at 15:43:13:

In Reply to: Re: Accutane posted by aya johns on April 10, 1998 at 12:30:22:


Dear Aya,

Since accutane has been so extensively discussed on this BB, your best shot at self-education would be to use the search feature at the beginning of the BB and just look up "accutane." You'll find a plethora of different options about and responses to accutane which will help you be the informed medical consumer you deserve to be. You'll also see that given the number of times accutane has come up on this BB and how much has been discussed, it wouldn't be time effective anymore for Dr. Stoll to write in depth about accutane whenever a general question comes up about it. There's only one of him and LOTS of us. He's got to conserve his energy too. Hope this helps.

Kyra



Re: accutane

Posted by Fem on April 10, 1998 at 16:26:01:

In Reply to: Re: accutane posted by Beth on April 04, 1998 at 09:36:59:

I've been on accutane for about 3 months and my skin looks great. I've been fighting acne since the age of 13 I am currently 32-I wanted to ask anyone if they were having aches and pains in their joints and if they did what did their doctor say for them to do about it? Thanks


Re: accutane

Posted by Laurel Unger on April 12, 1998 at 01:49:10:

I have had 3 treatments of accutane, currently on my 3rd at this time, only about a month more of treatment, and I am only semi-happy with the results. I am a 15 year old female and my father had very bad acne as a child. I am worried about the "after-the-fact" effects of acne, and if the treatment could entail problems with getting pregnant in my later years, since it is known to cause defects in women who are pregnant or become pregnant during treatment.



Re: Accutane

Posted by Walt Stoll on April 12, 1998 at 12:11:22:

In Reply to: Re: Accutane posted by aya johns on April 10, 1998 at 12:30:22:

Dear Aya,

That is my standard response because I do not have any better. Everyone responds differently to accutane. It is the responsibility of the prescribing doctor to do a complete history, physical and laboratory workup on any patient BEFORE prescribing the drug. THEN, that doc is capable of telling the patient what to expect by taking it.

Why do you think it is available by prescription only? Unfortuantely, docs can make a lot more money writing the prescription and getting you out of the office than being responsible to the recommendations of the pharmaceutical company that makes it.

The general risks and benefits are listed in the PDR and the package insert. It would take me hours to type out this information here on the BB. That is a terrible waste of MY time and effort when it is so easily available to you just for the asking. The risks specific to you can only be determined by the process I detailed above.

What do you want from me?

Walt



Re: Acne - a statement masquerading as a question

Posted by Jim on April 12, 1998 at 14:27:57:

In Reply to: Acne posted by Monica on April 12, 1998 at 01:23:29:

Monica,

I read your reply to Shelly elsewhere on the board today. I wonder, what is your point? What do you intend to convey? Is your sarcasm meant to communicate a point of view? You seem to be spoiling for a fight. Por que?

Are you an acne sufferer? Are you offended by the posts on the board? If you read enough of them, you will find some to please you, because all sides of this difficult problem are presented here. Why attack? Do you have helpful information to share?

Dr. Stoll has expressed the opinion that he views questions or comments on the board as sincere until proven otherwise. Your question above seems OK at first glance, but I doubt, after reading your first post, that it is anything but a rhetorical slap. Am I right?

And, yes, I was an acne sufferer. Many years have passed since those awful days when I knew for sure that I was too marred and ugly to be loved. That post is probably in the archive along with many hundred of others. I was more hurt than angry then. In those days there was no accutane, and, hence, no raging controversy.

God bless you, and donít feel you canít come out here and express your opinion, or frustration, (or hostility). We can take it.

Jim




Re: Accutane, retinoic acid and frog deformations

Posted by David Dashnaw on April 12, 1998 at 16:37:05:

This may not be worth anything but when I was a teenager, about 25 years ago, some friends and I use to go up to the Shanandoa River(I hope I spelled that right)near Morganstown. We would go swimming at what we first though were just quarry lakes but were later found out that they were being used to collect the run off/affulant from a Raython industrial site, what they were making I don,t know but to get to the point of this long winded speach "We were seeing mutated frogs with the same abnormalities as were on the news broad cast the other night. But if this causes defects in frogs now, It may be the percurser of things to come for mankind. I usually don't pay much attension to Eco groups that for example don"t want me Deer hunting, but this I'm afraid is for real and I hope they listen in Washington for this may be to late already. It brings to mind a book I read years ago call Silient Spring this is why some of these radical /extrem groups should be crying wolf over every thing the cause a crediblity loss for all watch groups


Re: Accutane

Posted by Aya on April 14, 1998 at 14:41:10:

In Reply to: Re: Accutane posted by Kyra Kitts on April 10, 1998 at 15:43:13:

Thank you, Kyra. I would also like to extend an apology for my abrupt manner towards Dr. Stoll. Didn't realize how I sounded until I re-read my message on the BB!! I would like to add that in the one week that I've been on the Accutane treatment, I haven't had a single noticeable side effect - perhaps one week isn't long enough for me to make a judgement?


Re: Accutane, retinoic acid and frog deformations

Posted by Walt Stoll on April 14, 1998 at 18:50:59:

In Reply to: Re: Accutane, retinoic acid and frog deformations posted by David Dashnaw on April 12, 1998 at 16:37:05:

"Right On", David, "Right On".

Eventually, the most obtuse of those denying what is happening will be forced to admit what is going on. In the meantime, you are to be congratulated in catching on.

The problem is that those who know have been reporting for years that by the time it is THAT obvious, it will be too late.

Today's paper had an article documenting the truth of those warnings. The ozone layer is going to continue to get worse for many years even if we stopped the causes we know of right now. The same things are true of the fertility problems we are seeing in humans and the frog stuff (early warning ignored till now).

Thanks for bringing it up!

Walt



acne

Posted by Mike on April 14, 1998 at 22:39:31:

I have read numerous postings about acne and no I do not have a question about Accutane. I eat very well, Wake up almost every morning and surf for a couple hours before work and then usually again after work, and spend a half hour before I go to bed stretching almost in a trance like state to relax myself for a good nights sleep. I have read your opinions on how a person who exercises, eats right, and spends time meditating should not have acne and I just don't see how that is true. I'm 27, in great shape, and have been doing these things for ten years and I have acne. I have tried all the prescription medicines with no luck and I am curious to here your yours or anyones thoughts on these techniques you talk about. I am not saying you are wrong at all and I think your doing a great service on this site for people although it seems to me this one opinion of yours on curing acne is far fetched.(please comment and don't tell me to buy the book.)


Re: acne

Posted by Walt Stoll on April 16, 1998 at 13:21:15:

In Reply to: acne posted by Mike on April 14, 1998 at 22:39:31:

Dear Mike,

Knowledge is the only thing that will save you. Your note is so full of disinformation that you are going to have to gain knowledge somewhere.

I make no money from my book so I have no ax to grind. However, since you think I am taking advantage of people why not read one of the books I reference in my book: "Mind as Healer, Miknd as Slayer" by Dr Pelletier? At least you would begin to understand how stress-effect causes the dysautonomia and endocrinopathy that causes persistant acne. The advantage of my book is that it tells what to do abuot the causes detailed in Pelletier's book.

Here is just one example of your need for knowledge:

ANYONE that knows ANYTHING about skilled relaxation KNOWS that any procerdure done within 2 hours of retiring does nothing about the long term causes of this problem AND that it takes at least twice a day to resolve the causes. ALSO, have you checked out, with biofeedback, whether your brain rhythms produced by your "relaxation" have anything to do with what resolves the problem (alpha/theta)? I wager not.

You also carefully didn't say anything about your diet. That is likely because you have made no effort to study the relationship between any parts of your diet and persistant acne.

The only way you will resolve this (now that you have had it for 10 years) is to deal with the hypothalamic contributions to the problem. The only way you will ever do that is to learn something.


Since I make NO money with this advice, what do you think I have to gain by burdening people with it? intentional ignorance is its own reward. Your library can find you a copy of my book whenever you decide you want to know how to get rid of the acne.

Good luck. If you ever decide to become knowledgable enough to discuss this intelligently, I will still be here & willing to discuss it with you.

Walt



Re: acne

Posted by Walt Stoll on April 16, 1998 at 13:25:40:

In Reply to: acne posted by Mike on April 14, 1998 at 22:39:31:

By the way, Mike.

The only reason I have listed the accutane archives in any question about acne is that is where most of the reasons behind the curative options to acne resolution are posted. My guess is that you avoided bothering with that suggestion for the same reason you have only learned the most superficial information possible about all this. Superficial understanding will not cut it for you.

However, the learning is only the easiest part. The DOING is MUCH harder. SO, until you can take the time to do the learning don't even think about the doing. You are not ready.

Walt



acne

Posted by 30 year old zit mamma on April 16, 1998 at 23:36:49:

use of accutane for acne.
my pharmacist told me not to get pregnant 1-2 years after finishing accutane because it is absorbed into the fat cells.
that scares me. is this something i should worry about?
what is the truth about accutane side effects ?



Re: acne

Posted by Walt Stoll on April 18, 1998 at 11:06:02:

In Reply to: acne posted by 30 year old zit mamma on April 16, 1998 at 23:36:49:

Dear 30 yo zit mama,

Use the search feature provideed with this BB & read everything you can find abourt acne, accutane and accutane side-effects. You will find your solutions there.

THEN, if you still have questions, write again. If not, please share your experiences as you get well. There are people lurking on this 'site who still can hardly believe that they have had this unnecessary condition for years simply because of the allopathic monopoly.

Walt



Isotretinoin vs Tretinoin

Posted by Laura Kimp on April 20, 1998 at 00:28:36:


Dr. Stoll, my name is Laura Kimp and I frequently use moisturizers and other skin care products which contain retinyl palmitate and tretinoin. I am aware that accutane has recently been labeled with a serious warning for depression as a side effect. I know that accutane is a synthetic version(isotretinoin) of vitamin A or tretinoin. My question is, can products with retinyl palmitate or
tretinoin, such as Retin-A, also cause depression(as a side effect)? And when using accutane, what part of the product is causing the depression side effect?


Re: accutane and side effects

Posted by Miriam Hayes on April 20, 1998 at 20:57:27:

I have been on Accutane since the end of Dec. 3 weeks ago I was increased to 3 pills a day. I am now starting to loose alot of hair. I stopped taking it about a week ago but still the hair lose continues. My doctor says that this is a rare side effect. What should I do?



Re: In reply to: RE: Accutane/and Dr Stoll

Posted by Darren Glenn on April 21, 1998 at 18:27:38:

In Reply to: Re: In reply to: RE: Accutane/and Dr Stoll posted by Monica on April 12, 1998 at 01:00:28:

I agree... I think Dr Stool and Shelly are very rude to peoples cries for help......



accutane

Posted by Jeff on April 21, 1998 at 19:04:55:

I have acne and I took accutane for a 4 month period and my acne came back and I'm thinking about taking it for another 4 month period. What effect does accutane have on sperm count or anything like that dealing with males? Have there been cases of men not being able to have children or producing deformed children because of accutane? Or is it alright to take accutane without any worries about my future in producing children?


Re: accutane

Posted by P Byer on April 21, 1998 at 23:22:34:

In Reply to: Re: accutane posted by Laurel Unger on April 12, 1998 at 01:49:10:

My daughter was prescribed accutane at the age of 15plus. She is now 33 with two children. Both children, aged 5 & 3 have arthritis and one of them has cataracts at the age of 3. There is no history in either parents family. We have a question about accutane. Are there any studies that we should know about?

Thank you.

P.Byer



Re: accutane

Posted by Paul Byer on April 21, 1998 at 23:46:20:

In Reply to: Re: accutane posted by P Byer on April 21, 1998 at 23:22:34:

As a result of reading a little more about accutane, I would strongly suggest that anyone thinking about using it should fully study the messages on the internet. My grandchildren are not only suffering from arthritis, they are suffering from rheumitoid (sp?) arthritis. One grandchild (3 yrs. of age is also suffering from cataracts and is due for an operation in one week. She also apparently will be using bifocals for the rest of her life.) My daughter used accutane for her acne 15 years ago. Just a warning!! Please get in touch with me if there are similar histories. I would like to add that the chances in Canada of two siblings having this type of arthritis are 16 out of our population!!! Pay heed.


Re: accutane side effects/ANSWERS?

Posted by Lisa on April 22, 1998 at 10:06:04:

I have many questions re: the side effects of accutane. Thought I might find some answers here but I searched the ENTIRE board and found only unanswered qustions...Ask Dr. Stoll??? Why bother he just tells you to look on the board and you will find the answer. I have yet to find a single answer...all questions which the Dr. provides the same canned reply. WHAT A JOKE!

If any readers out there might like to reply, I'd like to know what side effects are you having and what is your dose and current stage of treatment. Perhaps we can answer our own questions this way! Does anyone have any statistical information on the side effects both short term and long term? I would like to get some useful information.

I am 5 days into treatment and have very dry peeling skin and dry mouth. I can not wear my contacts due to eye irritation. I am very worried about future hair loss and joint problems. I take 40mg 2x/day and I weigh 155#.
Thanks,
Lisa



Re: accutane and side effects

Posted by Walt Stoll on April 22, 1998 at 12:56:45:

In Reply to: Re: accutane and side effects posted by Miriam Hayes on April 20, 1998 at 20:57:27:

Dear Miriam,

NOT so rare!

Did you not read the package insert before buying it?

It still is not too late to do what would have cleared up the acne without the accutane AND those same actions would be your best chance of avoiding baldness anyhow.

Use the search feature and read everything you can find about acne, accutane & accutane side-effects. THEN, if you still have questions, write again.

Walt



accutane/muscle pain

Posted by Diane on April 22, 1998 at 19:35:45:

Since I started using accutane I've had various types of problems. Completion of treatment was 91/2wks ago, and I still have muscle and some joint pain. Would you have any idea what is causing this type of pain? Am I lacking nutrients or could this be something serious? Should I contact my intern on this matter. I also developed edema, while on accutane. My derm, who I like, seems to feel the
adema is unrelated to the treatment. He has not been informed of the now cronic musle and slight joint pain.
I look forward to your comments and recommendations.
Diane.


Re: Accutane Attitude

Posted by Jim on April 22, 1998 at 21:16:50:

In Reply to: Re: accutane side effects/ANSWERS? posted by Lisa on April 22, 1998 at 10:06:04:

Lisa, go to the search engine and type in "Bulletin Board archives." Click on one of the five separate sections of Acne and Acctane. There are HUNDREDS of replies there. It will take you forever to read it all.

But you probably aren't going to get your answers about Accutane from other patients. I have read the Accutane posts. It is obvious to me that the side effects are an individual thing. There is no telling who will have what symptom. Some people are as pleased as can be, and some feel the medication has ruined their lives.

Sounds like you already have your answer. You are sensitive to the stuff! I have seen many posts describing the type of reactions you list. Some of these people say the reactions have lasted for years, even after stopping the medication.

See, the thing is, you're the one who is going to have to teach yourself about this stuff. Walt is only a resource. He can point you in a direction. I think his posts have been very direct, clear, and filled with valuable information. He has said many times that Accutane is a personal choice, and that there is a way to deal with acne without medication. His advice is expounded daily in ALL the posts. Acne is just one of a list of maladies that can be address by "things you do rather than things you take." (One of Waltís favorite sayings.) I have seen posts on this board from those who have followed his advice and reported excellent results (yes, with acne). Of course, there are also plenty from those who are indignant because he says what they donít want to hear.

The reason Walt gives "canned" responses at times is the sheer volume of the questions. Do you have any idea how often your question has been asked?! Instead of taking offense, try following the advice. Do the research he recommends. Do the reading. There is no easy way (as you are finding out). Don't blame him for not giving you a quick and easy answer, there is none. If, in your quest, you have specific questions which are not dripping with attitude, and you are doing your homework, he is only too willing to engage you in a meaningful dialog. Where else can you find that on the Net?

Jim




Re: accutane

Posted by Walt Stoll on April 23, 1998 at 14:11:51:

In Reply to: Re: accutane posted by P Byer on April 21, 1998 at 23:22:34:

Dear P.,

There is overwhelming literature in the world linking birth defects to molecules very closely related to accutane. For these little tykes to have these problems so early in life there is no doubt that their genetic susceptibilities are a form of birth defect.

However, while it is too late to do anything about their genetic susceptibility, it is NOT too late to do something about thier environmental stuff that works with genes to present as the actual diseases. All time & effort expended on the accutane's role in this is wasted. What is needed now is whatever can contain the damage as much as possible.

Now is the time for their parents to become very serious students of wellness for their kids. There is ample research in the literature about what can be done to reduce the genetic expression of both arthritis AND cataracts.

If these were MY kids, I would start them on at least 50 milligrams of CoEnzyme Q10, 200 units of vitamin E, 2000 miligrams of sterified vitamin C and 10 milligrams of zinc every day (all of these best taken in two divided doses) until I knew more about what I could do for them. These supplements cannot hurt them at this level and could do a lot of good for slowing the progression of their cataracts at least. They would also help their arthritis but not as much.

THEN, these parents must embark upon a heavy study program so they will be able to participate in the decisions about what to do with the functional physiology these kids have left.

When they are ready, if I knew which part of the country they lived in, I might know someone there who would be competent to guide them. Until THEY are experts, though, they should not even try to find a professional. They will need this expertise to know how to choose.

Walt



Re: accutane side effects/ANSWERS?

Posted by Walt Stoll on April 24, 1998 at 09:36:02:

In Reply to: Re: accutane side effects/ANSWERS? posted by Lisa on April 22, 1998 at 10:06:04:

Lisa,

You could NOT have read all that stuff & not found the answers to anything you are asking. I submit that you saw how much stuff there was & were too lazy to go to the bother.

That was a WISE decision on your part since what you would have to do to resolve acne would take a LOT more effort than just finding out about it.

When you have suffered enough, perhaps you will recall where the information is. Right now, you expect someone to spoon feed you---just like the AMA has brainwashed you to think is the "way".

Good luck!

Walt



Re: accutane/muscle pain

Posted by Walt Stoll on April 24, 1998 at 10:22:19:

In Reply to: accutane/muscle pain posted by Diane on April 22, 1998 at 19:35:45:

Dear Diane,

Have you read the package insert? If you have not yet used the search feature for this BB, & read everything you can find about acne, accutane & accutane side-effects, you should do so. There are many alternatives that are safer, more effective and a lot less expensive that would also help you with complications like this while dealing with WHY you took the stuff in the first place.

Walt



Re: Accutane Attitude

Posted by Walt Stoll on April 24, 1998 at 10:27:37:

In Reply to: Re: Accutane Attitude posted by Jim on April 22, 1998 at 21:16:50:

Thanks, Jim!

I needed that!

Namaste` Walt



Re: accutane side effects/ANSWERS?

Posted by Lisa on April 24, 1998 at 12:48:19:

In Reply to: Re: accutane side effects/ANSWERS? posted by Walt Stoll on April 24, 1998 at 09:36:02:


Walt..I submit that you are an ASSHOLE! How dare you call me lazy! I read your entire damn board and found absolutly no valuable information only unanswered questions. You seem to be just pushing your book that probably contains no useful information anyways. I also submit that YOU are the brainwahser here...READERS BEWARE! It's David Koresh revisited! Perhaps I should report YOU to whatever board monitors you doctors....are you even a real doctor?

As for you calling me lazy...I have spent about 40 hours in the past two weeks doing intensive research on accutane and it effects. I probably know more about the drug than you! This was just one of my research sites and I spent over 4 hours reading this BB. I have gotten one response from a person who is on it and I hope to get more. I do research for a living and since it seems no one has done this type of research, I will just have to do it myself.

Also for all the readers out there...if you want to get some more information call Roche Laboratories at 1-800-526-6367. Also, if you are experiencing any side effects at all you should call them and inform them. They are required by law to report all of these to the FDA and this will provide for better monitoring of the drug. I was also told that if a person wanted to get information from the FDA they could, but the format may be difficult to read and interpret. I beleive you only need to do a "Freedom of Information Act" request to get this.

I am most interested in hearing from people who have been off the drug for a number of years. What side effects did you experience and do you still have any? I can find almost no information on the potential long term effects of this drug. I have a friend whose sister was on it 10 years ago and is now loosing a lot of hair. This may or may not be related to the accutane, but hair loss has never been a problem in her family. Anyone else hear or experience anything like that? Any information would be appreciated. Thanks to the readers of this bullitin board and I hope we all can get our questions answered somehow. And I hope I have provided some USEFUL information to the readers here. By the way...I'M not selling anything :)


Re: accutane side effects/ANSWERS?

Posted by Walt Stoll on April 26, 1998 at 12:01:42:

In Reply to: Re: accutane side effects/ANSWERS? posted by Lisa on April 24, 1998 at 12:48:19:

Lisa,

I "dare" because you are more interested in flaming those who care enough to open doors for you than you are in dealing with your problem: "You can lead a horse to water----------------------"

MANY times, in the stuff you SAY your read, the references you need were suggested. You could not write such drivel if you had read them: my book and one of the resources in the back of my book--"Mind as Healer, Mind as Slayer" by Dr Pelletier.

There are lots of people who still want a magic solution handed to them. You have lots of company. Good luck!

Walt



Re: accutane and side effects

Posted by Jennifer Batz on April 26, 1998 at 15:09:09:


I have been on other meducations for my acne, but nothing has cleared it up for good. I am reluctant to try Accutane because of the side effects. Is it worth it?


Re: accutane and side effects

Posted by Jennifer on April 26, 1998 at 15:11:58:

In Reply to: Re: accutane and side effects posted by Jennifer Batz on April 26, 1998 at 15:09:09:


I have been on other medications before for my acne. It has improved but has not gone away comletly. I am reluctant to try accutane because of teh side effects. Is it really worth it?


Re: accutane side effects/ANSWERS?

Posted by Lisa on April 26, 1998 at 18:20:17:

In Reply to: Re: accutane side effects/ANSWERS? posted by Walt Stoll on April 26, 1998 at 12:01:42:

Well this will the the last time I visit this website. Obviously there is no way I can prove that I read this entire pathetic BB but I know I did and I know there are no answers here. Just some supposed Dr. pushing a book, probably not worth the paper it is written on if the "buy my book and you'll be happy forever" responses on this BB are any indication. By the way doc, I could not really understand the second paragraph of your response to my last post. That's pretty poor usage of the english language for someone supposedly carrying a Doctorate degree. But if I interpreted it correcly let me respond by saying...I would not read you book now if it were given to me. How can you call yourself a Doctor and write those sarcastic, accusatory responses to me. Have your forgotten your Hypocratical Oath? It appears to me that perhaps I hit the nail on the head with my posts and maybe that bothers you a bit.



Re: Accutane

Posted by Cathy on April 26, 1998 at 21:51:32:

Debbie,
I took accutane for several months 2 years ago. I was relieved that my acne completely cleared up after years of frustration but I also experienced the hair loss. I am beginning to break out again and my dermatologist has suggested taking 2 pills a week to keep it under control. I am wondering if there will be side effects with this low dose treatment. Nothing else seems to work for me.


Re: accutane and side effects

Posted by kimberly king on April 27, 1998 at 14:02:33:

I have dark spots from previous acne. Does accutane help to clear up the the dark spots and acne or does it only work on future 'would-be' acne?


Re: accutane and side effects

Posted by kimberly king on April 27, 1998 at 14:06:00:

is weight gain a side effect?


Re: accutane

Posted by Leah on April 27, 1998 at 17:03:07:

In Reply to: Re: accutane posted by Paul Byer on April 21, 1998 at 23:46:20:

Is there any proof that Accutane is the cause of your granchildren's conditions? I was told that the drug only effects the dividing cells of a fetus, but has no effects on sperm or eggs. Therefore - it wouldn't have any long-term effects with future pregnancies - only those exposed to Accutane during treatment or while the drug is still in the mother's bloodstream. This terrifies me - some chapped lips and dry skin I can handle but there's no way I would jeopardize my future children's health. Any other comments from anyone?



Re: accutane side effects/ANSWERS?

Posted by Leah on April 27, 1998 at 17:22:44:

In Reply to: Re: accutane side effects/ANSWERS? posted by Lisa on April 24, 1998 at 12:48:19:

I'm with you - I haven't found an iota of useful information on here. I will call the Roche Lab though. I'm really wary about Accutane. I can deal with the dry skin and stuff, but I want to know how women who took it years ago and who now have children have fared. That's my only concern - future preganancies. My dermatologist assured me that it has no effect on sperm and eggs - just developing fetuses. I'm still scared. I would never forgive myself if something went wrong with my children later just for curing zits. Any women out there who used it and now have kids?



Re: In reply to: RE: Accutane/and Dr Stoll

Posted by diane on April 28, 1998 at 06:47:56:


Just subscribing to aol within the last 2 weeks or so I'm not aware of all of the questions the have been asked in the last month or so. But here is my concern: I finished the 5mo. treatment now 10 weeks ago, the joint and muscle pain I was experiencing has subsided a great deal. I'm still feeling a lot of stiffness. Is this normal? My derm. suggested I join a stretching class. What level should I begin at. Is it okay to stretch a little then use the stair master. It was a rough 5 months on this drug but it does seem to have worked. Please reply.

thank you diane.


Re: accutane side effects/ANSWERS?

Posted by Opa Brutus on April 28, 1998 at 08:21:59:

In Reply to: Re: accutane side effects/ANSWERS? posted by Leah on April 27, 1998 at 17:22:44:

Leah,

What you mean, Leah, is that you haven't found any useful information you are willing to use. Have you used the search engine?

The reason you can't find stuff about pregnancy is that stuff like that won't show up for years. Accutane hasn't been around all that long. You wonít find it anywhere, only complaints from some that it has happened to them, some that it hasn't. Who will you believe?!

What is documented clearly on this board in the form of anecdotal posts is this:

1. It may work very well, at least in the short run, though not for all.

2. You can't know how you will be effected till you try it. (are you willing to play Russian Roulette) You think you can deal with the dry skin, but wait until it lasts years.

3. It is easily the most volatile subject on the board, and opinions (OPINIONS) are strong. You will find some expressions from some very sour personalities.

4. Dr. Stoll has stated clearly and often that acne can be cured without medication. Unfortunately, few are willing to do what is necessary. Many are willing to rant, rave, and complain about him and this board however.

Yeah, yeah, weíve heard it all before. Heís just trying to peddle his book and so forth. Do us a favor and take it elsewhere.

Opa Brutus




Icthyosis and Accutane

Posted by Debbie McInroe on April 28, 1998 at 10:44:16:

I am 41 years old and have had icthyosis vulgaris since
birth. My younger sister has it also, but not as severe.
My son does not have it, but my daughter seems to developing
the condition. I have tried everything known to man, but
nothing helps. When I was a child the doctors had me take
baths in epsom salts then rub petrolatum all over then my
mother wrapped me in saran wrap. It is difficult to sleep
wrapped up like a mummy. I recently went to a new dermatoligist and she started me on accutane treatments. I don't understand how something that dries acne could help my dry skin, but it did. Only one problem, within 10 days of starting the treatment I could not read anything. I had to buy magnifying glasses and within another 3 days I could not read with them. I stopped taking the accutane and within 2 days I could read again. Has anyone else tried accutane and if so with what results?




Re: accutane side effects/ANSWERS?

Posted by Chantel on April 28, 1998 at 19:16:24:

In Reply to: Re: accutane side effects/ANSWERS? posted by Lisa on April 22, 1998 at 10:06:04:

This is the 2nd time i've been on Accutane. It is an excellent drug and a dangerous one. My 1st experience was in 1989 and I was on it for 4 months, the cost then was $90 for 1 months supply. After the 4th month of using Accutane I noticed my vision was beginning to worsen. I just thought it was nature,but it was the Accutane. It made my vision blurring and I had no choice but to wear glasses. I didn't notice any kind of weight gain at all. The 2nd time I was on Accutane was 4/97 - 8/97 and the cost then was $152.00 for 1 months supply! This time I noticed dry cracked lips and a very dry nose to where scabs would form and didn't go away( finally) until 9/97. My vision is still the same, but still I didn't notice any weight gain.


Re: accutane/muscle pain

Posted by diane on April 28, 1998 at 21:47:08:

In Reply to: Re: accutane/muscle pain posted by Walt Stoll on April 24, 1998 at 10:22:19:


Thank you for your reply. I'm 40 yrs. old and just was tired
of the constant acne problems that persisted since I was 11yrs. Accutane was a risk, but I have been under the care
of 4 derms. in the last 12 years. My body did not respond to any of the meds given and I'm allergic to minocin types.
So far I'm pleased with my results and will look foward to
all of your suggestions regarding follow up care.
thanks,
diane


Re: accutane and side effects

Posted by Christopher Reece on April 29, 1998 at 17:20:26:

In Reply to: Re: accutane and side effects posted by Jennifer on April 26, 1998 at 15:11:58:

Jennifer,
After trying many acne treatments nothing has worked. Not even DIFFERIN worked. As a last resort my doctor recommended ACCUTANE. I have been taking it (60mg) every day for the past 5 months and I can say it has TRUELY WORKED FOR ME. My ugly revolting acne has dissappered!!! The only real problem I've had is very dry skin. I've even have to use Moisturizer. Oh, and I always carry around a tube of lip balm. I can say w/out a doubt, that accutane REALLY WORKS! Try and let me know if it works for you.

Best wishes,
Chris
e-mail chris_reece@juno.com



Re: accutane

Posted by Walt Stoll on April 30, 1998 at 10:13:48:

In Reply to: Re: accutane posted by Leah on April 27, 1998 at 17:03:07:

Dear Leah,

There area ample articles from the world literature showing the genetic effects of many molecules similar to accutane. Believing in the company's protestations about there being no proof that the accutane molecule could cause similar problems to future genetic transfers is like believing the tobacco companies protestations, over the past 50 years, that there was no proof about the addictive properties of nicotine or that smoking caused many different diseases.

I do not know that accutane could cause this kind of damage. The package insert for accutane is not sure either. If there were no other options, informed consent should be the law of the land. However, there are MANY safer, more effective & less expensive options that just are not offered for economic reasons.

Walt



Re: accutane side effects/ANSWERS?

Posted by Walt Stoll on April 30, 1998 at 10:43:42:

In Reply to: Re: accutane side effects/ANSWERS? posted by Opa Brutus on April 28, 1998 at 08:21:59:

Thanks, Opa Brutus.

You are saying what needs to be said. There are still many people out there who get really angry when they hear it suggested that they do not need to keep their chronic conditions. I don't blame them, I would be angry too (as a matter of fact, I WAS when my holistic dentist suggested it more than 20 years ago). However, that anger can be directed at the "messenger" or is can be used as energy to prove the messenger wrong. Anyone who does THAT has to try it. They will soon find out that it DOES work & they become the most enthusiastic proponents of a new way of thinking . Then, THEY have to face the same things from those people that they would like to help.

Namaste` Opa Valt



Dr. Stoll Is this anything?

Posted by steve on April 30, 1998 at 11:49:38:


Dr. Stoll,

You may remember me.... very quickly, I suffered from cystic acne, took Accutane... it didn't do much. I had great success altering my lifestyle and diet.
OK..... this may sound funny, I don't know the medical terms for this but, I often cough up small white/brownish partcles that smell. I know most people do this on occasion but, when I was taking Accutane it got worse and now that I've been off Accutane for almost 2 years I still do this. It feels there's an accumulation of it in my throught.. I could almost taste it.
I figure it has something to do with digestion.

Is this normal? Thanks


Re: Dr. Stoll Is this anything?

Posted by David Ferguson, D.C. on April 30, 1998 at 13:33:25:

In Reply to: Dr. Stoll Is this anything? posted by steve on April 30, 1998 at 11:49:38:

Sorry for butting in.

It depends on what you mean by "coughing up". The little white/brown balls of stink that many people have are bacteria from the crypts of the tonsils and similar structures. A small piece of food gets lodged in these crypts and bacteria grows on it. Tonsils generally become more crypted with each throat infection(sore throat) therefore it may or may not have anything to do with accutane.

So of course you want to know how to get rid of them.
Sleep, relaxation, a good multi-vitamin, brush your teeth before bed, and anything that can increase the strength of your immune system to fight the bacteria will help.

Digestion has little to do with these "stink balls" but overall health has a lot to do with them. It's almost like having a throat infection with no soreness.

Best of luck.


Re: accutane side effects/ANSWERS?

Posted by Barbara King on April 30, 1998 at 18:38:54:

In Reply to: Re: accutane side effects/ANSWERS? posted by Lisa on April 24, 1998 at 12:48:19:

I am 31 years old and have had acne since I was 15 years old. I found a doctor in October of 1997 who suggested that I try Accutane 40mg 2X daily. I took accutane for 4 months. I had dry skin, but not too bad. I had blurred vision after 3 months of treatment, but it also cleared up. I had very dry lips that needed a special ointment. I had a pain in my hip joint (a possible side effect) that I had to go through months of physical therapy for. "Joint pain" was an understatment!! I could barely walk. This has recently cleared up. But all of us probably feel that this is a small price to pay for acne clear skin. Well, I would like to know, too, what are the long term effects? I would not reccomend this drug for anyone in thier pre child birth years. We just don't know how long this drug stays in someone's system and if it could cause some of these same side effects to your unborn children?? I would like to hear from anyone who has taken accutane for the full 3-4 months and how their skin in reacting since they stopped using it. - My skin was lovely while I was on the accutane. I have not had any more acne nodules since taking the accutane. However, I have since experienced some deep pitting and scarring (depressings in the skin surface) that worsen daily and I cannot understand why. I had not had any acne in these places for many years. I of course asked my Dermatologist about this to which his reply was "I cannot answer that for you. Maybe you can have dermabrassion in a year." Thanks! I feel so much better. He said, there are no reported cases of this. I called Roche Laboratories, they, of course, never heard of this occuring in patients taken accutance. Bull shit!! I am so discouraged by the response that I get from the medical community. Has anyone experienced this side effect?? If so, is it temporary?? I am pretty down about this and would love to hear from anyone. I hope that no one out there experiences any real horrible side effects. Barbara in Maryland


Re: accutane

Posted by Susan on April 30, 1998 at 19:03:44:

In Reply to: Re: accutane posted by Susan on April 03, 1998 at 13:16:49:

I thought Accutane was a miracle drug--and it was for awhile. My face began breaking out when I was in my midteens. I had a dermatologist who dug holes in my face and left me in tears each time I went. I took tetracyclene and Minocine (spelling?). I used drying and abrasive cleansers. I tried avoiding this food and that makeup and everything else. I broke out in large cysts that would take weeks to months to go away. I broke out with each monthly cycle and anytime I was stressed or upset. I broke out straight through the teens and all through my twenties. When I was about 28, around 1982 or '83, I learned of Accutane. I believe I took the 10mg for about six months. I had the dry lips, occasional cracking at the corners of the mouth, and slight nosebleeds--but my skin became drier and clearer. My hair became less oily, too. I felt so lucky and so greatful for this new drug. (By the way, I have no pictures whatsoever of those previous years. It killed me to see them.)
In 1989 I began to have trouble again. I knew this could happen, so I took another six months of Accutane. Again, I cleared up. I thought that was the end of that. I am now going on 44, and the cysts are starting up again. My skin is as oily as before. I wear waterbase makeup and even water it down more--plus I wear Clearasil for Adults thinned down with water under the makeup and whenever I am not wearing makeup. I was considering the Accutane again. I have only recently read the information and comments from others posted on the internet. I have not seen any comments from others my age. I'll probably still be wearing Clearasil at 89!

Sorry to leave you with such grim news. Again, it was great when it worked. I think it lasted up until this year.



1998: Jan Feb Mar Apr

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