Aplastic Anemia 1997 posts (1 of 1)

aplastic anemia

Posted by Charlene Woodward on September 10, 1997 at 12:52:40:

Dr. Stoll, I have your book and have corresponded with you in the past. I have a diagnosis of Aplastic Anemia vs Myelodysplastic Syndrome. I am being treated for LGS and have had extensive contact with both naturopaths and hematologists. Naturopaths are running out of ideas, MDs are recommending immunosuppressant therapy with likely Bone Marrow Transplant. I am continuing to vigorously explore options and wonder if you or your readers can refer me to alternative information sources on the internet. I have had one transfusion because I became too anemic and fear now I am due again. Many thanks for whatever information you can pass on Charlene email me at dgctbook@cascade.net


Re: aplastic anemia

Posted by Walt Stoll on September 11, 1997 at 10:00:43:

In Reply to: aplastic anemia posted by Charlene Woodward on September 10, 1997 at 12:52:40:

Dear Charlene,

In MY experience, environmental chemical injury is the most common cause of your condition. It is aggravated by LGS so you are moving in a positive direction.

You need one more specialist working in your team--a Clinical Ecologist. If we have not discussed this before, write again so I can direct you as to how to find a good one close to you.

There are whole sections in the library, now, about Clinical Ecology & EI (environmental illness). So much is being learned right now about this process that you should only read things published in the past year or so.

Walt



Re: aplastic anemia

Posted by Charlene Woodward on September 20, 1997 at 12:42:04:

In Reply to: Re: aplastic anemia posted by Walt Stoll on September 11, 1997 at 10:00:43:

I have Sherry Rogers books on EI. I believe I am doing much of what she recommends but it is time to go back and re-read and reapply. What do you think? Meanwhile, I would appreciate any Clinical Ecologists you can refer me to in the Seattle WA or Spokane area. Failing someone in those areas, I have family in Southern CA (Orange County) and could possibly connect with someone there. BTW I did visist a Clinincal Toxicologist (I asked Seattle Area Dr. referral services for Clinical Toxicologist but they said they do not list that specialty) and met with a Dr. at Harborview/Unv of Washington Medical center. He felt that being close to an apple orchard I could indeed have had a chemical exposure...but there was nothing to be done about fixing it!



Re: aplastic anemia

Posted by Walt Stoll on September 21, 1997 at 11:40:33:

In Reply to: Re: aplastic anemia posted by Charlene Woodward on September 20, 1997 at 12:42:04:

Dear Charlene,

I would be very reluctant to go to a CLinical Toxicologist since they are totally in the allopathic paradigm. These are the same guys who hold to the ridiculous standard in the US that Electromagnetic Smog cannot hurt you unless it "cooks" you. Look up the standard. Unless the exposure is so strong as to increase the temperature of the exposed tissue, it is considered "harmless".

The British proved many years ago that COMBINING electromagnetic smog WITH environmental allergens could turn on & off those allergies with a switch. These guys are still looking at the trees and have no idea that there is a forest there at all.

One of the main concepts behind Clinical Ecology is that the combination of stresses is more important than any of the individual stresses on their own.

Call the American Academy of Environmental Medicine, Box #16106, Denver, CO 80216. Sorry, I do not have their phone number. When you get it, I would apreciate your sharing it with us here on the BB.

People with EI, are all genetically susceptible to these problems. You are serving as the "canary in the coalmine" for the rest of us. There are MANY things you can do to reduce your genetic susceptibility. Once you have been exposed to the orchard, there is little you can do about that exposure. However, if that was the only tree in the forest, everyone in your neighborhood would have had the same response as you did. Obviously, that is not true. This fact proves that there is something ELSE different about you and THAT is what ELSE you can do.

Toward that end, the only thing that can save you is knowledge. I would suggest you start with a copy of my book. Once you have that under your belt, you will be a LOT more competent to choose your way through the minefield of the health care system as it presently exists. I would do that even before finding a local specialist in EI.

THEN, if you have more questions, write again. As you improve, I hope you will take the time to share your experiences with us here on the BB. The problem you are experiencing is becoming VERY common. Others deserve to know that this is happening so it doesn't happen to them. A knowledgable & aroused public is the only thing that will save us. The government will never do it & the AMA, whose livelyhood depands upon treating the symptoms of these causes will be the last to change.

Walt



Re: aplastic anemia

Posted by Charlene Woodward on September 24, 1997 at 02:15:41:

In Reply to: Re: aplastic anemia posted by Walt Stoll on September 21, 1997 at 11:40:33:


Walt, Thanks for the info on Amer Acad of Environ Med.
I will post the phone # when I get it.


Re: aplastic anemia

Posted by Shirley B. Austin on October 25, 1997 at 16:49:02:

In Reply to: Re: aplastic anemia posted by Walt Stoll on September 11, 1997 at 10:00:43:


My husband, Tommy, has been diagnosed with Aplastic Anemia and I am worried sick. Any support you can give me will be greatly appreciated.
Also, could a vitamin that has not been processed properly be the toxin causing this condition? He is 62 and has been taking this certain make for about five or six years. How do we go about getting this vitamin checked out? My suspicion stems from the fact that sometime the pills were still wet when we recieved them in the mail. Also they had a rather bad odor like an "eye stinging vapor" when I opened the bottle.
I look forward to recieving your answer.


Re: aplastic anemia

Posted by Walt Stoll on October 31, 1997 at 09:53:50:

In Reply to: Re: aplastic anemia posted by Shirley B. Austin on October 25, 1997 at 16:49:02:

Dear Shirley,

Please note from the note at the top of this page that I am on a 3 week speaking tour & am not available to my home base where I have many of the resources you will need. Please resubmit your note when I get back. In the meantime, it would help if I knew his age, occupation & part of the country you live in.

In the meantime, you both would be benefitted by reading my book whish is intended to create a baseline for understanding the mechanisms that almost always cause conditions like this (see link at the bottom of this page).

If you would go to the library & ask them for the simplest (very recent) book about Clinical Ecology, that would be a good, more specific, headstart. The reason I recommended MY book first is that it provides the general background for you to better understand the WHY of the CE reference.

As you both know, this is a usually fatal disease. If behooves you both to become students of this condition ASAP.

Walt


Re: aplastic anemia

Posted by Beth Miles on November 02, 1997 at 14:07:01:

In Reply to: Re: aplastic anemia posted by Charlene Woodward on September 24, 1997 at 02:15:41:


My father died a year and half ago from complications caused by aplastic anemia--he survived five years with the disease.
We (my family & I) were never clear re: cause, when he was first diagnosed, he was on high blood pressure medicine (had been on it for about 10 years at that time) and taking medication for gout--at one point someone hinted that these drugs used in combination can sometimes poison one's own body and cause great complications, such as aplastic anemia. But nothing definitive was ever determined.

My father worked for Texaco, in management, not actually working with chemicals. Many times his doctor talked about the dangers of benzene, but I never believed this was why he had the disease. I was hoping you could offer some advise or opinion.

Is the disease becoming more common? I find it amazing that a very close friend's father was also just diagnosed with it...what are the odds?

Does it affect men more than women?

Please respond, with thanks and regards
Beth Miles


Re: aplastic anemia

Posted by Walt Stoll on November 03, 1997 at 12:40:41:

In Reply to: Re: aplastic anemia posted by Beth Miles on November 02, 1997 at 14:07:01:

Dear Beth,

The only known cause for this condition is multiple chemical susceptibilities and IS becoming much more common. We will see this become even more common before this culture decides we have been riding the train of chemistry long enough & the price is becoming too high.

Unfortunately, the susceptibility for this is genetic so YOU have to worry. As you know, the Gulf War Syndrome is now known to be caused by exactly this synergy of muiltiple, low dose, chemical effects.

There are now more than 500,000 new chemicals that have been invented in the past 100 years (never having been on God's earth before). We now know that the measurable effects of one chemical can be magnified as much as 1000 times just by adding one more chemical to the equation. How much effect can there be from the average ot 150,000 we each are in contact with daily???

Your father needed to see a good Clinical Ecologist. He probably would still be alive today. The intentionally ignorant physicians who took care of him are probably still ignorant. Just think what an upheaval there will be when the public realizes the bomb they are sitting on.

Walt



Re: aplastic anemia

Posted by Cynthia on November 24, 1997 at 13:34:03:

In Reply to: Re: aplastic anemia posted by Walt Stoll on November 03, 1997 at 12:40:41:

Hello Walt,

I am an identical twin. Both she and I have aplastic anemia.
Our platlets go up and down like a roller coaster. I just
had my nose catuerized last night due to a bloody nose that I could not stop from bleeding. They took a CBC and 2 months ago My count was 115, today it is at 102. I have been sleeping alot. I have an appointment with my hematoligist on Dec 11, 1997. What can they do for me other then just montoring me. I am hping to go to Bethesda Maryland in late Febuary to see a Dr.Neal Young. Thankyou
Have a nice Holiday


Re: aplastic anemia

Posted by Walt Stoll on November 25, 1997 at 14:23:33:

In Reply to: Re: aplastic anemia posted by Cynthia on November 24, 1997 at 13:34:03:

Dear Cynthia,

Both you and your twin need to see a competent Clinical Ecologist. It is well known what causes aplastic anemia and NO hematologist, worth the air to blow him/her up, should do the watch & wait game.

Call the American Academy of Environmental Medicine, Box #16106, Denver, Colorado 80216 (sorry, I do not have their phone or FAX). When you get it, please share it with us here on the BB. They can tell you the names of the closest physicians who could figure out WHY you have this. Until you do something about that, you both are doomed.

As you get well, if it is not too late, please share your experiences with us here on the BB. This used to be a very rare condition & NOW it is common. What do YOU think is going on???

Walt



Re: aplastic anemia

Posted by K. Davis on November 28, 1997 at 18:31:52:

In Reply to: Re: aplastic anemia posted by Cynthia on November 24, 1997 at 13:34:03:


Contact the Aplastic Anemia Foundation. They can give you information on appropriate treatment and would be most interested in your story. It might help find an important link in this disease.


Re: aplastic anemia

Posted by Edward De Aguiar on December 05, 1997 at 23:41:24:

In Reply to: Re: aplastic anemia posted by Walt Stoll on November 25, 1997 at 14:23:33:

Dear Dr. Stoll,

Chancing upon your correspondence regarding aplastic anemia,
I would be grateful for any input you can provide. My father
was diagnosed with this condition approx. 1 month ago. He was passing a lot of blood through his urine for a couple of days, and a urologist diagnosed it as an infection, and prescribed antibiotics. About 4 days thereafter, upon feeling very ill (and grey in color), he went to his oncologist (he had surgery for early stage cancer of the esophagus/stomach in the summer - no chemotherapy), thinking that it was related to cancer. The oncologist immediately sent him to a hematologist, where it was found that he was down two pints of blood, and his platelet count was (3?). He was immediately hospitalized, given transfusions, and put under care of a hematologist "experienced" in this "rare condition". After one week in the hospital they sent him home except that now he goes into the hematologist daily for shots to stimulate the bone marrow to produce, and gets bloodwork twice a week. His platelet count was down to (6) last weekend, and they let him go until Tuesday for a platelet transfusion. Today, Friday, they had to give him another as the count was down to (6) again, and have put him on an anti-rejection medicine. We are worried sick, as the information we are getting is very vague. Basically, we are being told to be patient, that this is a long drawn out process, and that they have to stimulate the bone marrow to produce again via a regime of particular drugs. The hematologist is of the opinion that this was brought on by
a case of mono approx. 17 yrs. ago that lay dormant, but I personally believe it has to do with recent exposure to
a concentrated dog dip he got from the vet for ticks that he used approx. 3 - 4 times on his dog without wearing gloves or anything. Compound this with spraying the yard with Ortho about the same amount of times with little protection. The warnings on the pamphlet I got (there was a tick epidemic in Miami) referred to serious implications to not wearing gloves, an apron, etc. before applying the dip.
Any ideas or comments? The hematologist felt that such short term exposure could not have triggered it, but I feel that there may be a way of "detoxifying" him. The treatment they are giving him does not seem to be working. Sorry for the length of this, but I thought a full overview might help.

Thank you,

Ed



Re: aplastic anemia

Posted by Walt Stoll on December 06, 1997 at 14:09:58:

In Reply to: Re: aplastic anemia posted by Edward De Aguiar on December 05, 1997 at 23:41:24:

Dear Ed,

This is a case where you know a lot more about this than the supposedly educated "experts" who are being paid to pretend THEY are the experts.

You need to have him see a good clinical ecologist before it is too late. Once the bone marrow is all dead, only the grace of God can bring him back.

The dog dip is probably only the "straw that broke the camel's back" of his immune reserves. It is undoubtedly the more than 300,000 recently (last 100 years) invented chemicals in our environment--that never existed in the world before--that we each are exposed to every day.

When I began practicing medicine, more than 30 years ago, most physicians went through their entire practice lives & never saw a case of aplastic anemia. However, now it is fairly common. Anyone who thinks that the human race has evolved in 30 years is pretty ignorant.
This HAS to be something from the environment. Any hematologist who pretends nothing is known about the cause of this dread disease might as well do something else for a living.

Call the American Academy of Environmental Medicine, Box #16106, Denver, CO 80216, for the closest Clinical Ecologist to where he lives & get there soon for a consultation. The longer he is exposed to whatever else is keeping this going, the more damage there will be.

Let us know what happens.

Walt



Re: aplastic anemia

Posted by Edward De Aguiar on December 08, 1997 at 23:50:29:

In Reply to: Re: aplastic anemia posted by Walt Stoll on December 06, 1997 at 14:09:58:

Dear Dr. Stoll,

Thank you for the quick reply. We are arranging for my father to visit a clinical ecologist who is a member of the American Academy of Environmental Medicine per your suggestion. For your easy reference, updated info on them is as follows:

Home Page : http://www.aaem.com

Their website has a database of members that can be searched by zip, state, city, or name. Hope this helps others.

Also, updated address/phone:

American Academy of Environmental Medicine
Box CN 1001-2001
New Hope, PA 18938

Tel: 215-862-4544
Fax: 215-862-4583
Email: info@aaem.com (for info)

Thank you again,

Ed


Re: aplastic anemia

Posted by Walt Stoll on December 14, 1997 at 14:26:31:

Dear Tamra,

Set the searchengine for aplastic anemia & read everything that has been said about it here on the BB. You will at least see what your options are at this stage.

Interesting that you should mention your career as a dry cleaner since expoosure to that kind of environmental stress is what we have been talking about here. Hematologists still try to claim ignorance of this mechanism. Shame on them!

THEN, if you still have questions write again.

Walt



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