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any lupus or rheumatoid arthritis testimonials?

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any lupus or rheumatoid arthritis testimonials?

Posted by
Jill [1031.1575] on January 30, 2005 at 17:17:41:

Hello,

I was wondering if anyone diagnosed with lupus have any positive testimonials? I've looked in the archives but was curious if there are any new or more recent or old ones that continue to still do well? I recently went to the doctor with some light joint achiness in my hands and feet. A few months ago also had some various muscle achiness. The rheumatologist ran my ANA's and my results came back quite high. My titer was 1:1280. He thinks I could have any one of six connective tissue diseases developing. His first guesses are Rheumatoid Arthritis and next Lupus. I'm really scared because I have an 8 month old daughter of whom I want to see grow up. Does anyone have any info they could share with me?


TIA,

Jill



Re: any lupus or rheumatoid arthritis testimonials?

Posted by Walt Stoll [9.1465] on January 31, 2005 at 08:46:17:

In Reply to: any lupus or rheumatoid arthritis testimonials? posted by Jill [1031.1575] on January 30, 2005 at 17:17:41:

Jill,

ANA results are only indicative of an autoimmune response. See the autoimmune archives adn start dealing with your LGS.

Let us know what you learn and how you do.

Walt

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Re: any lupus or rheumatoid arthritis testimonials?

Posted by Tonia [166.1615] on January 31, 2005 at 10:47:20:

In Reply to: any lupus or rheumatoid arthritis testimonials? posted by Jill [1031.1575] on January 30, 2005 at 17:17:41:

Hi,

I don't have any first hand experience with Lupus, but I have read that some theories suggest that Lupus could be a result of aspartame ingestion, or due to gluten allergy.

IC3 in brocolli is said to delay the onset and reduce the severity of Lupus. Thus, brocolli sprouts, because of their high concentration of nutrients, should be helpful. Also, ginger, green tea, garlic, fish oil and turmeric are known to decrease inflammation associated with Lupus. Violet A-1 light is also supposed to be helpful.

The Mayo clinic has experimented with a drug called mycophenolate mofetil, which is supposed to have minimal side effects. Also, the University of Rochester has experimented with rituximab, a drug for lymphoma, which has also been shown to be effective.

Hope this helps.

Tonia

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Re: any lupus or rheumatoid arthritis testimonials?

Posted by Maggie [64.74] on January 31, 2005 at 12:23:52:

In Reply to: any lupus or rheumatoid arthritis testimonials? posted by Jill [1031.1575] on January 30, 2005 at 17:17:41:

I, personally, have not had much luck dealing with my sero-negative RA. But, then again, I've been very atypical from the beginning. But, I thought I'd share, a friend of mine who started out similar to you, changed her diet dramatically right at the start of her problems, with great success. She went to eating only vegetables and brown rice, with spring water, (she is vegetarian so I'm not sure how meat would come into play here) similar to an anti-candida diet as found in the Yeast Connection book. Her symptoms abated quickly, and her bloodwork improved dramatically, within a couple of months. She is still symptom free several years later, and has liberalized her diet now, but is still very careful about what she eats. Good luck to you, try to remain positive and don't let traditional drs. get you down. You can heal from this.

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Re: One further question....

Posted by
Jill [2037.1575] on January 31, 2005 at 20:17:35:

In Reply to: any lupus or rheumatoid arthritis testimonials? posted by Jill [1031.1575] on January 30, 2005 at 17:17:41:

Hi Dr. Stoll,

First off, thank you all for your comments. If I practice serious wellness, whole food diet, SR, ect. than how much better can I expect to get? How much can practicing these things improve my current situation? I just want to go into this with realistic expectations...

Thank you,

Jill



Re: One further question.(Archive in RA.) Effectiveness of wellness approach.

Posted by Walt Stoll [9.1465] on February 01, 2005 at 07:32:56:

In Reply to: Re: One further question.... posted by Jill [2037.1575] on January 31, 2005 at 20:17:35:

Thanks, Jill.

First of all ic can do no harm! I have yet to see a patient like you who did not improve with this approach. ALL volunteered that, even if their RA had not improved, their positive side effects would have made their efforts worthwhile.

Many, though not all, totally reversed their symptoms so long as they continued with their program. Some became over confident, after being symptom free for a while and sloughed off on their program. Some of these still remained symptom free although most relapsed until they got back on their program.

Hope this helps. Never stop learning even when your symptoms stop.

Walt

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Re: any lupus or rheumatoid arthritis testimonials?

Posted by monique [1040.1319] on February 01, 2005 at 14:29:52:

In Reply to: any lupus or rheumatoid arthritis testimonials? posted by Jill [1031.1575] on January 30, 2005 at 17:17:41:

look at robert mcferran's archives and read biobalance. i find the diet to really help ra. find out your food allergies and eat right for your metabolic/acidic/alkaline type and it helps.

monique

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