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Ankylosing spondylitis TESTIMONIAL

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Ankylosing spondylitis

Posted by Dan [7550.2967] on December 05, 2006 at 08:36:28:

To what degree can this be treated or reversed?



Re: Ankylosing spondylitis

Posted by Happygal [2062.2967] on December 05, 2006 at 09:30:53:

In Reply to: Ankylosing spondylitis posted by Dan [7550.2967] on December 05, 2006 at 08:36:28:

Hi Dan,

Have you read Norman Cousins' book about how he worked with this condition?

Best wishes,
Jan



Re: Ankylosing spondylitis

Posted by Dan [7550.2967] on December 05, 2006 at 09:44:11:

In Reply to: Re: Ankylosing spondylitis posted by Happygal [2062.2967] on December 05, 2006 at 09:30:53:

Nice. Thanks Jan.

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Re: Ankylosing spondylitis (immediate helpful idea)

Posted by Ron [1013.2966] on December 05, 2006 at 13:34:34:

In Reply to: Ankylosing spondylitis posted by Dan [7550.2967] on December 05, 2006 at 08:36:28:

Hi Dan,

Have you had a blood test called Hla B27 to prove that this is what you are dealing with?
If not, you should get one.
(Did you know there is a genetic connection between AS
and Crohn's Disease.)
While you are reading those books, the arthritis that is in the lower back progresses..

Here is an article that has some scientific studies behind it, which you might find helpful in choosing another doctor who uses the approach.
There is nothing wrong with using both approaches at the same time if you do have "leaky gut"

Good luck



TESTIMONIAL Ankylosing spondylitis

Posted by Barbara J [855.2873] on December 05, 2006 at 21:17:09:

In Reply to: Ankylosing spondylitis posted by Dan [7550.2967] on December 05, 2006 at 08:36:28:

Ankylosing Spondylitis can be put in remission with diet only.

My husband had terrible back pain and was diagnosed with AS when he was almost 40. He was a Supervisor in an auto factory. He walked most of the day. One night after work he crawled in the house he was in such pain. He was in so much back pain he was hospitalized for a week at one point. He took pain pills all day. He was on muscle relaxants and anti-inflammatory drugs. He took 5 in all, I think, some with possible devastating side effects. I read A LOT about arthritis and testimonies from people who said they had found relief from a diet change. He said he would try for 2 months with no cheating. I took him off wheat, dairy, and sugar. I upped the fish, cut red meat to the minimum and he had some poultry. Mostly he ate vegetables, vegetables, vegetables both cooked and raw and a bit of brown rice. I also put him on beneficial bacteria…Lactobacillus and Bifidobacteria, flax oil and a vitamin. In 6 weeks he was off all drugs and in no pain.

He is now 66 and has spent most of the 20 + years loosely on that diet and with the exception of 2 times when he again ate sugar, With those two exceptions he has been pain free. He is not deformed at all, nor has he ever been disabled since he left MD”s care for AS and changed his diet.

In one book which is no longer in print was information about research by Dr Alan Ebringer done in England which pointed to bowel infections of Klebsiella bacteria and possibly Candida yeast fungus infection as the cause of AS. Sugar and high carbohydrate diets feed these infections. The diet I put my husband on, unknown to us, reduced these problems. We know sugar played a part in his pain of AS. He began having pain only on weekends. I found he was walking at work during his break, and on Friday as a “reward” for being "good" all week, he had a frozen yogurt. There is more sugar in frozen yogurt than in ice cream. That amount of sugar caused him up to 3 days of pain. Off that, he again was pain free.
Years later he again went back to sugar and AS became a problem again. This time I had a bowel bacteria study made at Great Smokies Lab (they have a new owner now). That test showed Klebsiella infection. He didn’t do the Candida test properly so no report on that. Again on the low carbohydrate diet the pain was subsiding when he was treated with an antibiotic for the Klebsiella. I can’t say if antibiotics would help…but the diet does!

It is a lifetime eating that way to stay in remission. As I understand it because of the B27 gene problem the infection continues to reoccur if it has the opportunity. Don’t feed the yeast and Klebsiella and there is no AS.

For 26 years my husband carried big salads to work. People made fun of him, but because of the way he ate he was able to work 12/7 for most of 3 years with NO back pain. There was no heel pain, no red eyes, no hip joint pain…absolutely no sign of AS!

Some of the books that I used so many years ago to find help for him are no longer in print. There is one now that does address the AS problem with diet and success. I have been writing about this online for years. With all there has been found out since I found answers, it is a crime that people still suffer from this problem.

Find “Alternative Medicine Definitive Guide ARTHRITIS” by Zampieron, ND AHG; Kamhi, PH.D, RN, HNC; with Goldberg ISBN 1-887299-15-7 There is supposed to be a 2nd edition out but I haven’t found one yet. On the second page of the first chapter is a story of a man’s success using basically the same diet my husband did. That book is for sale on Amazon new or used for $1.83 up. Lots of good stuff in there!

This book also mentions a possibility of gene HLA DR 4 gene, Proteus vulgaris and Proteus mirabilis bacteria as being the problem with Rhuematoid Arthritis because they have found antibodies to these in RH patients. Also there are other bacteria as being suspect in RH.

God Bless!





Re: TESTIMONIAL Ankylosing spondylitis

Posted by Ron [1540.2966] on December 06, 2006 at 11:59:23:

In Reply to: TESTIMONIAL Ankylosing spondylitis posted by Barbara J [855.2873] on December 05, 2006 at 21:17:09:

Hi Barb,

With all the changes in diet, how much weight did he loose? That may have helped reduce the load on the back joints.

Ron



Re: Ankylosing spondylitis (immediate helpful idea)

Posted by LT [1203.1394] on December 06, 2006 at 18:06:18:

In Reply to: Re: Ankylosing spondylitis (immediate helpful idea) posted by Ron [1013.2966] on December 05, 2006 at 13:34:34:

thanks for posting that link.

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Re: TESTIMONIAL Ankylosing spondylitis

Posted by Barbara J [855.2873] on December 06, 2006 at 19:01:52:

In Reply to: Re: TESTIMONIAL Ankylosing spondylitis posted by Ron [1540.2966] on December 06, 2006 at 11:59:23:

My husband did loose some weight. This was twenty some years ago, I can't really say at this point how much he lost. Since then, he has been up to 230...with no AS problem. At that time he was thinner than now. I would say 210 tops. Maybe he went down to 190. He is 6'3". Right now he is about 220, 66 years old and no pain.

I am not saying that a weight loss wasn't good, but weight is not what caused the pain on just on weekends after his pain had been gone for months...that pain was eliminated when he stopped eating the double or triple dip frozen yogurt on Friday. The next time he had pain he was back on 2 to 4 donuts a day through the week. It wasn't a weight loss diet I put him on. I thought he had allergies and they might be causing the pain. He ate fried fish as well as broiled and baked, fried chicken as well as roasted and grilled, regular salad dressing...just not dairy, sugar or wheat for 2 months. Now he eats some dairy and some wheat with no problem. He still can't eat sugar. He will get minor pain...but not like he had 25 years ago.

In a book about Allergies and Arthritis written by a doctor in England that is no longer in print, I read about the 1970's research done by Alan Ebringer, MD, member of the Dept of Rheumatology at both Middlesex Hospital and Kings College in London. He is the one that found the correlation between Klebsiella and AS. Klebsiella/AS was also listed in a Handbook from the Arthritis Society. "Alternative Medicine Definitive Guide Arthritis" (for sale for $1.83 on Amazon) on page 134-136, gets more detailed about "molecular mimicry" of Klebsiella and HLA-B27 genes. It also lists other microorganisams implicated in development of arthritis if conditions are right. Candida is also one. It mentions "Leaky Gut" and things Dr Stoll has been talking about for years. Find the book at a bookstore. You don't have to buy it to sit down and really check out what is in it. Then if you are interested, get it on Amazon for less than $2. It retails now for $18.95 I think.

My husband had the Klebsiella infection when he was tested when he ate the donuts. When he was in pain again I asked his doctor to do a "Bowel Bacteria Study from Great Smokies Lab" and she did. The report came back he had an infestation of Klebsiella and they gave her directions on which medication best did away with it. BUT, by that time he was back on the diet and his pain was lessening. He did take the medication but I don't know if it would have worked by itself. The problem with that treatment seems to be that re-infection keeps happening over and over because of HLA B27 gene problem. Therefore one must eat what keeps the bacteria at a tolerable level.

I am not a doctor or a scientist. I am just someone's wife that tried to find a way to help her husband. I read a lot about what other's said worked for them. Because I read a lot and two times, years apart, he had problems again, we were able to pinpoint what was causing the problem. Because he had the test done...it showed Dr. Ebringer's research was right in my husband's case and I would imagine in so many more it is sickening this disease continues.

But then I must say, that I have met people who won't even try to give up sugar for relief, let alone change their diet to the one my husband used for 2 months.




Re: TESTIMONIAL Ankylosing spondylitis

Posted by Ron [1540.2966] on December 07, 2006 at 11:42:44:

In Reply to: Re: TESTIMONIAL Ankylosing spondylitis posted by Barbara J [855.2873] on December 06, 2006 at 19:01:52:

Hi Barbara,

A friend of mine has not has sugar since he was 10 years old..
He won't even try diet sodas out of fear and loathing of sweetness.
It sems that he is actually allergic to sugar and can't even stand pineapple on a pizza...
of course, he only drinks Vodka to further limit his sugar intake.
Even most beers will cause him bloating and digestion problems.

The Hla B27 gene seems to be more common in those of Eastern European descent..
AS and crohns are both related and commonly are both
present in sufferers even if not diagnosed.

Does that apply to your husband?
here is a link on crohns.. see the similarities

Ron



Re: TESTIMONIAL Ankylosing spondylitis

Posted by Barbara J [855.2873] on December 07, 2006 at 18:26:38:

In Reply to: Re: TESTIMONIAL Ankylosing spondylitis posted by Ron [1540.2966] on December 07, 2006 at 11:42:44:

Interesting. Husband had continuing diarrhea until his back pain went into remission. Bloody on occasion, he said. I met him when he was 30. He didn't see a doctor until his back was so painful he couldn't kill the pain with over the counter things. He drank Pepto Bismal almost by the bottle. This is no longer a problem, either.

Maybe it isn't sugar in your friends case, but carbohydrates. I think Klebsiela is a sugar lover, but I don't know why other carbs wouldn't feed it also, as well as fruit or milk. What does he mix with his vodka? I don't know the carb content of alcohol beverages, but they do take the blood sugar on an elevator trip.

You can buy a bowel bacteria study online now, I think. It is pricey at several hundred dollars.

I know several sober alcoholics who have AS. At least one is a "sugar-holic" and he is disabled by AS. He is one of several I have talked to that wouldn't give up sugar for anything. My guess is that he has a candida thing also. With the sugar he makes his own alcohol in his gut.

I found quite a number of Native American's with AS. Husband is English.

There is info on Google about Klebsiella + Crohns + AS. Here are two. I haven't looked to see if Dr Alan Ebringer's research is online.

http://ard.bmj.com/cgi/content/abstract/51/12/1296
http://www.springerlink.com/content/qk29e43c885yypyq/

Barb J

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Alan Ebringer MD Research

Posted by Barbara J [855.2873] on December 07, 2006 at 18:43:55:

In Reply to: Re: TESTIMONIAL Ankylosing spondylitis posted by Ron [1540.2966] on December 07, 2006 at 11:42:44:

Dr Ebringer does have a website. On it is AS and Crohns.

http://www.kcl.ac.uk/kis/schools/life_sciences/life_sci/ebringerH.html

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