Graves Disease (thyroid) historical posts April 1998

Re: Graves Disease

Posted by Merlyn Baxter on April 02, 1998 at 23:13:06:

Hi,
I have Graves disease and have suffered for almost 2 years,I have not lost weight infact have gained. My eyes bulge and i have been close to suicide so many times these past couple of years. If you have any thing that can help me please email me with any information you might have I am desperate. I have had 2 radioactive iodine treatments the last one last november and im still hyper thyroid it taking a long time for it to drop. I have searched the web for any information but must not be looking in the right places. please help me.


Re: Graves Disease

Posted by Walt Stoll on April 04, 1998 at 07:59:38:

In Reply to: Re: Graves Disease posted by Merlyn Baxter on April 02, 1998 at 23:13:06:

Dear Merlyn,

You are finally at the right place. NOW, use the search feature & read everything you can find about Graves and ANY thyroid condition (since they are all caused by the same mechanisms). Whether you come down with Graves or some other thyroid condition depends only on what genetic susceptibility you have---NOT the causes.

THEN, if you still have questions, write again.

Walt


Graves'Disease

Posted by Angie Steele on April 12, 1998 at 18:30:42:

I want to find out more about homeopathic treatment
for Graves' Disease. I can't find any information
in the Library's or book stores. Thank you.




Re: Graves'Disease

Posted by Kyra on April 12, 1998 at 23:52:28:

In Reply to: Graves'Disease posted by Angie Steele on April 12, 1998 at 18:30:42:


Dear Angie,

Use the search engine at the beginning of this BB to look for posts by Donna M. McCormack (hope I'm getting Donna's middle initial right), and also for Graves Disease. One way or the other, you'll find Donna. She has a wealth of experience with homeopathics for Graves that I'm sure she'd be glad to share with you. Hope this helps.

Kyra



Re: Graves Disease

Posted by Tim Shoecraft on April 13, 1998 at 14:27:57:

my wife, or (ex as of 4/8/98)-- was recently diagnosed with graves disease, please help me help her find some answers here in Houston Texas
thanks,
Tim Shoecraft



Re: Graves'Disease

Posted by Walt Stoll on April 14, 1998 at 18:55:42:

In Reply to: Graves'Disease posted by Angie Steele on April 12, 1998 at 18:30:42:

Dear Angie,

Start a note about this titled something like "Homeopathy and Graves". Donna lurks this BB and has personal experience with this with her daughter. I would be surprised if she was not aware of references.

I STILL say that: chronic conditions like this will NEVER be resolved by things you take but by things you do. Any good Homeopath will teach the patient what to DO while they are getting better with homeopathy.

If you want to know what I mean about things to DO, use the search feature for this BB & read everything you can find about any thyroid condition (since they are all caused by the same basic mechanisms). THEN, if you still have questions, write again.

Walt



Re: Graves Disease

Posted by Walt Stoll on April 15, 1998 at 10:15:25:

In Reply to: Re: Graves Disease posted by Tim Shoecraft on April 13, 1998 at 14:27:57:

Dear Tim,

This has been discussed extensively, right here on this BB, for years. Please use the search feature provided & read everything you can find about ANY thyroid condition (since they are all caused by the same mechanisms).

THEN, if you still have questions, write again.

Walt



Re: Graves'Disease

Posted by Susan Failes on April 16, 1998 at 19:59:24:

In Reply to: Graves'Disease posted by Angie Steele on April 12, 1998 at 18:30:42:

Dr. Stoll: I am a freelance writer writing an article on Graves Disease for Today's Dallas Woman Magazine. I would like to have a copy of your book on Graves so I can offer some less-invasive alternatives. My deadline is fairly close. Any chances on getting one to me? I would credit it in the article.
Would appreciate hearing from you.


Re: Graves Disease

Posted by BJS on April 16, 1998 at 20:40:28:

Please tell me any information on drug therapy vs. radioiodine therapy. I have just recently been diagnosed.
Thanks.



Re: Graves Disease

Posted by BJS on April 16, 1998 at 20:49:48:

I intend to go to my local bookstore to get your book. I just feel that there might be something besides radioiodine therapy to treat this disorder.
Currently, I am scheduled to have this done April 21st. I have had a second opinion from an doctor of internal medicine and endocrinology. He agreed with my primary care physician that I needed to have the radioiodine therapy. This condition has developed suddenly over the past year. I have really had no identifiable stress situation and I do not have a family history of this problem, only hypothyroidism.


Re: Graves Disease

Posted by BJS on April 16, 1998 at 20:54:29:

Please send whatever links you can that deal with alternatives for treatment for this disorder. What herbal balancer and homeopathic remedy are you using?
Thanks


Re: Graves Disease

Posted by AMS on April 16, 1998 at 21:49:52:

In Reply to: Re: Graves Disease posted by BJS on April 16, 1998 at 20:40:28:

I'm a Graves patient for over 11 years. I'm sorry I don't know of any new drug therapy to help you but I received radioiodine twice before my hyperactive thyroid was under control. Since then, I take my daily Synthroid prescription and am feeling great at "40". I was treated by the best at "Mayo" clinic. Without the radioiodine, I don't know what would have happened as I had a very severe case. Had to undergo orbital decompression and lid retraction surgery. I hope you find the alternative you are looking for, but if not, I can attest to the relief that radioiodine and my prescription gave to me. I've never felt better! I'm not a big believer in drugs either, and I hope you find an alternative. If not - don't give up on radioiodine.

Good luck to you.



Re: Graves Disease

Posted by Walt Stoll on April 18, 1998 at 10:30:13:

In Reply to: Re: Graves Disease posted by BJS on April 16, 1998 at 20:40:28:

Dear BJS,

Use the search feature provided with this BB & read everything you can find about any thyroid condition (since they all have the same basic causes). Your answers are there.

THEN, if you still have more questions, write again.

Walt



Re: Graves'Disease

Posted by Walt Stoll on April 18, 1998 at 10:39:31:

In Reply to: Re: Graves'Disease posted by Susan Failes on April 16, 1998 at 19:59:24:

Dear Susan,

My son, Bill, forwarded your email to me & I responded immediately (yesterday).

By the way, if your deadline is VERY close, you might just use the search feature provided with this BB & read everything you can find about ANY thyroid condition (since the causes are all the same--the specific diagnosis is due to the genetic susceptibility of THAT individual, not the causes). Much of what is convered in my book is discussed there.

The real advantage of the book would be that it organizes the causes of the conditions throughout the book & what to do about them. That is why those who read the book & focus only on their particular problem, are missing the entire purpose of the book.

THEN, you could reference my website instead of my book. My purpose is PUBLIC education. I make no money from what I do either on the 'site or from the book.

Walt



Graves Disease - Does Stress Effect It?

Posted by Susan Dever on April 18, 1998 at 14:37:28:

I have graves disease. For the past year and half I have been under a great deal of stress. Approximately 6 months ago the stress elevated to the point that I had to seek medical help. At that time my left eye started hurting me (sharp pain when I'm really upset and dull ache all of the rest of the time) and my vision started to become affected. I have recently had a CAT scan and the muscle behind the eye is swelling. My doctor has me on steriods and is talking about radiation treatment. Is there a correlation between the stress I'm under and the problem with my eye?


Re: Graves Disease

Posted by sheila on April 19, 1998 at 23:18:38:

I have been diagnosed with graves opthalmopathy, although I have a n underactive thyroid (for the last 15 years). I have been off work (Iam a teacher) for the past 7 months. My eyes are protruding, I have paralysis of vertical movement in my eyes, double vision and severe sensitivity to light. I have been on 3 different eye drops (trusopt, timoptic and Xalantan)daily. They did not help the pressure in my eyes at all. It has been sitting at about 32. Now I am on prednisone and it seems to be helping. If it does not do the trick , the are talking orbital decompression surgery. Has anyone had this?


Re: Graves Disease

Posted by Karen Bersche on April 20, 1998 at 13:19:35:

I have been through probably the worst and most stressful time of my life and it has not yet let up. Yes, I also had a death of a dream, and now an endocrinologist thinks I have Graves Disease. In 3 hours I go back to the hospital for a thyroid uptake. We will see what the outcome is. I would rather not take medication for this. I'm looking for diet, vitamins, or whatever else I can do, unfortunately the stress is not going to go away for a while.



Re: Graves Disease - Does Stress Effect It?

Posted by Walt Stoll on April 20, 1998 at 15:46:25:

In Reply to: Graves Disease - Does Stress Effect It? posted by Susan Dever on April 18, 1998 at 14:37:28:

Dear Susan,

SURELY your present doc, so bent on suppresing your symptoms, has told you that! When I was in medical school 40 years ago they already knew that Graves was most commonly triggered by even the stress we were aware of way back then.

Hans Selye, MD, the world's greatest stress-effect researcher & publisher was in his hey-day from the 40s to the 70's. He is dead now but still is considered the world's greatest authority about stress.

You are going to an intentionally ignorant physician and the only thing that will save you is for you to become knowledgable enough to protect yourself.

Read one of the many books referenced in the back of my book: "Mind as Healer, MInd as Slayer" by Dr Pelletier. THEN, you will understand what you have. When you are ready to do what needs to be done to reverse it, you should read my book (link below).

THEN, if you still have questions, write again. You might also consider asking people on the BB who have experienced resolving this, to send you their experiences. While you are waiting, use the search feature provided with this BB & read everything you can find about ANY thyroid condition since they are all caused by the same mechanisms. How the person experiences their condition is but an aspect of their genetic susceptibility.

Walt



Re: Graves Disease

Posted by Nicole M. Randall on April 21, 1998 at 14:19:23:

I am a high school student with a history of Graves Disease in my family and as part of an Anatomy & Physiology course, I would like to write a paper on this topic (apporxiamately 5 pages in length)....What would be the best resources for me to consult?


Re: Graves Disease

Posted by Virginia on April 21, 1998 at 22:29:39:

I was just diagnosed with Graves' Disease. The medication Tapazole worked well for two weeks when I started running a fever and had swelling in my hands and knees. Now the doctor wants to do radioactive iodine. I need as much info. as quickly as possible.


Re: Graves Disease

Posted by G Meza on April 23, 1998 at 00:15:51:

Please send info on herbal balancer and homeopathic remedies

you are using. Just got diagnosed and have a classic

textbook Graves. Thanks and God Bless.


Re: Graves Disease

Posted by Walt Stoll on April 23, 1998 at 10:36:46:

In Reply to: Re: Graves Disease posted by Nicole M. Randall on April 21, 1998 at 14:19:23:

Dear Nichole,

If you want your paper to just explain Graves as a diagnosis, & what the conventional approaches to suppressing the symptoms are, your best resource would be your public library.

If you want to help people understand the causes for this condition so they can get rid of it, you should use the search feature provided with this BB & read everything you can find about ANY thyroid condition (since they are all caused by the same mechanisms---how the problem shows up depends upon the genetic makeup of the individual, not upon the causes). Then, if you have need for more depth, my book would give you the best resource I know of (link below).

Walt


Graves diagnosis

Posted by Karen Bersche on April 23, 1998 at 14:52:03:

Went to doctor recently for heart palpitations and ended up in endo Dr. office who thinks I have Graves. Blood test showed hyperthyroid and I went for uptake last Monday. I do not find out the results under I see endo again on May 5th. Meanwhile, she has me taking Beta Blocker 10mg 4xs per day. I have been reading your BB and already decided I will not take the medicines the endo spoke about. Will order your book and try that route first. I have been severely depressed with suicidal thoughts, weight gain about 7 lbs, legs and ankles swell up. I recently had a "death of a dream" and still am not dealing with it, but do not know how to go on.
What are your thoughts on aspertame consumption? I started eating yogurt with aspertame about 11 months ago but I do not consume any other food or drink with aspertame.


Re: Graves Disease

Posted by Walt Stoll on April 25, 1998 at 09:12:52:

In Reply to: Re: Graves Disease posted by G Meza on April 23, 1998 at 00:15:51:

Dear G.,

You would be wise to learn about ALL of your options before settling on anything. People are just too different for any approach to work for everyone. Becoming an expert takes work but not NEARLY so much work as applying what you determine to be right for you.

There are NO shortcuts except luck. If you are willling to entrust your future to "luck" go ahead & try just any alternative. If you want to be sure to clear this up, use the search feature provided with this BB & read everything you can find about all thyroid conditions (since they are all caused by the same mechanisms). THEN, you will be at least pointed in the right direction.

Walt


Re: Graves Disease

Posted by Regina Gevaras on April 25, 1998 at 17:07:03:

I was diagnosed with Grave's disease in July of 1995. Seven months after the birth of my son. After I had given birth, within one month, I had lost 30 pounds and my hair started falling out. I was tired all of the time and had a hard time even climbing a flight of stairs. I then noticed that I was having trouble swallowing food. I thought for sure I had some type of tumor in my throat. Food would become stuck and I would feel as though I was choking. It was very scary. I was also having what I thought were "mini heart attacks" at night when I went to bed. One night it felt as though my heart was pounding so hard that it actually flipped over in my chest. I was too scared to go to the doctor and be told that I was dying. (Which I was sure was happening to me.) A few more months went by and I went to my family doctor who told me that I probably had strep throat and prescibed antibiotics for me for the throat problem. About a month later when it didn't go away (the blockage) I went back to him and told him that my neighbor told me that she saw something "bulging out" of my throat while I was eating and suggested to me that I might be having some type of thyroid problem. When I presented this theory to my physician he laughed and told me to leave it to a "professional" to decide if there was something wrong with my thyroid. He then proceeded to write me a prescription for some blood work. ("if it made me happy"). The very next day he called me to let me know that my thyroid levels were toxic and that I needed to go see an endocrinologist right away. (In the meantime I had been having such outrageous anxiety attacks and fits of temper and rage that I had also consulted with a psychiatrist, who, without a second thought prescibed prozac.) After some more blood work prescribed by my endocrinologist I was finally diagnosed with Grave's. He then gave me my options and I decided to take the radioactive iodone and kill it off. (my eyelids had both receded pretty far and I was hysterical - I was also informed that my heartrate was 150 beats per minute when I was sedintary). I just wanted to get it over with and if I had to take a thyroid hormone supplement at a later time, it was ok with me because I didn't want to die and I didn't want my eyes to bulge out of my head. On December 1, 1995 I took the pill and now, on April 25, 1998 my thyroid levels are still normal, I have to take no type of supplement and my weight is a very normal 125. I would definatlely tell anyone to take the iodine and I am fine. I had to share that whole story, but my question to anyone is, 1) did my pregnancy create or bring on the grave's? 2) If I decide to have another child will it throw everthing off and come back? I am planning to get pregnant again in the fall and I'm scared the whole thing could happen again. Can anyone out there answer any of these questions? If so, please respond to me at wmlaw@stratos.net. Thank you very much and I hope I didn't bore you with my very very very long story. Regina G. Gevaras, Cleveland, Ohio


Re: Graves diagnosis

Posted by Irma Casares on April 26, 1998 at 12:29:19:

In Reply to: Re: Graves diagnosis posted by Walt Stoll on April 25, 1998 at 09:51:14:


Hello my name is Irma, I was diagnosis with Graves, and I am try to understand. I have two kids, and very worrie, My
Doctor dose not tell me too much.
Thank you for any information you might have, Also my thyriod is overactive. Hyper


Re: Graves Disease

Posted by Walt Stoll on April 27, 1998 at 09:54:21:

In Reply to: Re: Graves Disease posted by Regina Gevaras on April 25, 1998 at 17:07:03:

Dear Regina,

First, it is not uncommon for pregnancy to be the precipitating factor that tips the scales, in one already on the edge, toward Graves. After all, pregnancy is one of the most powerful glandular stresses known. However, one has to be close to the edge already for this to happen and THOSE causes are just hidden by destroying the thyroid tissue with RAI. They are still there & will surface in some other way later in life.

Besides, RAI has a half-life af at least 50 years so the thyroid is still being destroyed every day. What you are experiencing right now it the fleeting time while your thyroid function is close to normal. Tell us how you feel in 10 years (or less).

Sorry to burst your bubble but your present docs have not been entirely straight with you. By the time you figure it out, it will be past the "statute of limitations" so why should they care?

I would suggest you read a copy of the great classic by Dr Pelletier: "Mind as Healer, Mind as Slayer". THEN, if you know enough to want to deal with WHY your pregnancy could have "pushed you over the edge", & what to do about it, you would profit by reading a copy of my book (link on this page). Nothing can save your thyroid now that you have the RAI in your system but at least you will have a better idea how to run the rest of your life.

I sent my patients for RAI for 10 years before I began to learn better.

Walt



Re: Graves Disease

Posted by Carrie on April 27, 1998 at 23:06:30:


I wish I had answers to give you but alas - I am following the exact same pattern that you are following, I was diagnosed and treated and left to take synthroid - since then I gain and lose weight - my hair is thin and white - i am tired and my memory seems to be in a dense fog. I don't know where to turn at this time but if you find out any information, please let me know and I will do the same for you.


Re: Graves Disease

Posted by Lisa Owens on April 28, 1998 at 21:18:28:

Pamela,
When you find out your answer would you please email me. My 13 yr old daughter was just diagnosed with this disease and she has all of those same symptoms. She is 5'7" and now has gone up to 189 lbs. She is large boned, yet I have never encountered anything like this.

I look forward to hearing from you.

Thank you, Lisa



graves desease

Posted by miller on April 30, 1998 at 00:46:58:

HI:
My wife age 49 gas had a nucliour scan test that the radiolgist said was suggestive of graves desease and goiter
24 hour uptake was 52.5%
she has no eye problem no atrial fib or other heart symptons
only that from time to time she gets anxiety attack with a bit faster heart rate
no arrythmias at all which I find; will calm down with 2 200 mcg cromium vitamin
she also went 15 months ago on a OA diet and lost 60 pounds.
The minute she stops the diet she start gaining it back

1) Is it possible the diet triggered the hypertyroidisim.?
2) How can I reverse the daamage?

Thanks
Mr Miller


Re: Graves Disease

Posted by YOLANDA on April 30, 1998 at 22:53:37:

In Reply to: Re: Graves Disease posted by Lisa Owens on April 28, 1998 at 21:18:28:

HELLO...My name is Yolanda and I was diagnosed with Graves Diesease in November. The symptoms I experienced with Graves Disease included massive weight loss until the doctors killed my thyroid. I then went Hypothyroid and experienced involuntary weight gain. I gained 20 lbs in a three week period. I am now on Synthroid and feel a whole lot better! The weight is also coming off. Slowly but nonetheless its coming off.



Re: goiter

Posted by diane on April 20, 1998 at 17:03:43:

My dad had a biopsy on a goiter. It was told to be a goiter
and he was told several years ago to get off salt and he did
So he hasn't had salt for years. He was told by a doctor to
start eating iodized salt and to take iodine for his goiter.
It is alot smaller and now this other doctor is saying you need to get it biopsyed again and check it again. We feel like that is unneccesary to do. We feel like the iodine is going to do it.It is taking time to get it down. My Dad is confused as to what to do. He was told to get off salt because he had high blood pressure. Please advice us?


Re: goiter

Posted by Walt Stoll on April 22, 1998 at 12:27:51:

In Reply to: Re: goiter posted by diane on April 20, 1998 at 17:03:43:

Dear Diane,

Your dad needs to read my book IF he is willling to see how all this is caused by the same stuff AND would be willing to change things if he understood WHY (link below).

Short of that, there is no reasonable answer to his dilemma.

There are MANY different kinds of goitre so the actual diagnosis must be determined for any conventional treatment. HOWEVER, since all thyroid conditions are basically caused by the same mechanisms (except for the one due to iodine deficiency) you would benefit from using the search feature for this BB & reading everything you can find about any thyroid conditions (remember, Graves Disease is a thyroid condition too) to see what other causes he might have control over.

If his goitre is getting smaller, I have no idea why any reputable physician would be recommending another biopsy. His cause has already been determined & he is responding to proper treatment. Unless something else has come up & they are just not telling you about it----

If the latter is the case, THEN the resources I mentioned above come into play.

If you think he is willing to become a student of this, let me know & I will point the way for him to do the work.

By the way, mineral salt does not aggravate hypertension-- only refined salt does.

Walt


1998: Jan Feb Mar Apr

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