Interstitial Cystitis historical posts April 1998

chronic urethrotrigonitis

Posted by Lois Pritzlaff on April 10, 1998 at 12:12:44:

I have been diagnosed with this bladder problem. I was treated with a chemical that they inserted into my bladder. It did nothing for me. I feel like I have a constant bladder infection. Have you any suggestions? Thank you Dr. Stoll. You have helped me so much in the past.


Re: chronic urethrotrigonitis

Posted by Walt Stoll on April 12, 1998 at 12:04:32:

In Reply to: chronic urethrotrigonitis posted by Lois Pritzlaff on April 10, 1998 at 12:12:44:

Dear Lois,

This is just another name for chronic interstitial cystitis. I have an article about this on my home page (link on this page) to get you started.

This is a totally unnecessary condition. However, you are going to have to learn enough to be an expert in the causes AND to do what you learn is necessary to resolve it.

Let me know if yu have more questions after getting the above beginning under your belt.

THEN, as you get well, I hope you will be willing to share your experiences with the rest of the people on this BB. There are a growing number of people out there with exactly what you are experiencing and they deserve to know that the problem is NOT conventionally resolvable but that they can do it themselves.

Walt



Interstitial Cystitis

Posted by Alan Berry on April 20, 1998 at 15:59:42:

My wife has recently been diagnosed with IC. She is having a terrible time with the pain. She is only 26 years old. We have a two year old little girl.
We have been to three different doctors. The last one is at Emory University in Atlanta. A renowned facility. We are not very encouraged by the results. They have basicially told us that she will have to live with the problem. She cannot live with the apin. What should she do? She is currently undergoing a series of home irrigations nightly. Please respond.

ALAN BERRY




Re: Interstitial Cystitis

Posted by Patty Davis on April 20, 1998 at 22:31:06:

In Reply to: Interstitial Cystitis posted by Alan Berry on April 20, 1998 at 15:59:42:


The book entitled "You Don't Have to Live With Cystitis" by Larrian Gillespie, M.D. addresses interstitial cystitis and remedies for alleviating some of the pain. She mentions a special diet that eliminates some surprising irrtants to this condition. Some of her suggestions really do work and are worth trying. Anything to get rid of that pain!


Re: Interstitial Cystitis

Posted by Walt Stoll on April 22, 1998 at 12:06:26:

In Reply to: Interstitial Cystitis posted by Alan Berry on April 20, 1998 at 15:59:42:

Dear Alan,

Go to the link: Interstitial Cystitis.

If you think she would be willing to learn enough about this to discharge her "bracing", have her get started.

As she gets well, please share her experiences with the rest of the BB participants. This is another of those "unnecessary conditions" that I upset so many people by telling them about.

Walt



Re: Interstitial Cystitis

Posted by Nancy on April 22, 1998 at 20:56:38:

In Reply to: Re: Interstitial Cystitis posted by Patty Davis on April 20, 1998 at 22:31:06:

Patty

Would you mind elaborating a little on that diet? I don't have time to read anything else right now, but would really appreciate knowing what the author has to say, briefly. Thanks!!

Nancy



Re: Interstitial Cystitis

Posted by Gretchen S. Ellis on April 25, 1998 at 02:37:12:

In Reply to: Interstitial Cystitis posted by Alan Berry on April 20, 1998 at 15:59:42:

Alan, I'm surprised that your doctors are treating your wife's interstitial cell cystitis in this manner.
There is a body of sound medical literature accumulating that indicates using injected or oral DMSO as a treatment for this condition. The results have been very good.
DMSO (dimethylsulfoxide) is a phyto-steroid acting much like corticosteroids, but that's too simple. It may be a panacea, but no one will know because it's over the counter in most states in medically pure form.
Once any useful medication is OTC and easily obtainable, pharmaceutical companies do little, if any, research on it. The use of DMSO for interstitial cell cystitis was pioneered in Canada and France, not in the U.S. Other medical uses for DMSO in other countries include treatment of spinal injuries to avoid T-cell damage to the spinal cord, treatment of extra- and intra-cranial injuries for the same reason, treatment of severe (and moderate) bruising (topical application), and even treatment to allevate superficial veinous and capillary damage (including spider veins) with DMSO and vitamin K in a topical form.
If your doctors won't use DMSO for your wife's condition, consider topical applications over the abdomial area. DMSO is the "universal solvent", and will penetrate to the bloodstream in a matter of minutes, acting first locally, then throughout the system. For this reason, the gel or ointment should be applied only on clean skin using a sterile gauze, and a sterile dressing or undyed, white cloting placed on the area after the gel or liquid dries.
Medically-pure DMSO is made by a pharmaceutical laboratory in Vancouver, B.C. for use by physicians in Canada, and by Clinical Services in Hemet, CA, to veterinarians and health supply stores in the U.S.
In the U.S. DMSO sold in public must bear a warning that it is to be sold only as a solvent. However, the words "medically pure" and/or "99.99 pure DMSO" should appear on any container.
If Dr. Stoll thinks this is a hare-brained idea, we might come up with something else. No one should suffer from interstitial-cell cystitis. I think it's outrageous that in "medically civilized" countries such as the U.K., such prominent persons as the Queen Mother can have chelation therapy (successfully) to alleviate her blocked coronary vessels and use DMSO (successfully) on her arthritic knees, yet in the U.S. such practices are called "Alternative".
Thank heaven for physicians such as Walt Stoll!

/Oma Gretch


Re: Interstitial Cystitis

Posted by Walt Stoll on April 27, 1998 at 09:28:38:

In Reply to: Re: Interstitial Cystitis posted by Gretchen S. Ellis on April 25, 1998 at 02:37:12:

Dear Oma,

Once again, you are "right on". I get so angry when safe & effective approaches like this are ignored by the conventional medical monopoly in our "uncivilized" company, that I tend to forget to even mention it.

Even at that, DMSO is just a very effective & safe treatment--not a cure. Only stopping the perineal bracing will permanently resolve this condition. However, if I had it myself, I would use the DMSO for temporary relief. Remember, if one cannot find any enlightened physician to instill this, it can be done through a catheter. Since women are nearly the only ones who have this problem, self-catheterization is easy. I would have to go to the library & get a book about DMSO (written in the past few years) to know even what dose to use.

Thanks for sharing some of your wisdom with the BB!!!!

Namaste` Walt



Re: Interstitial Cystitis

Posted by Oma Gretch on April 28, 1998 at 01:25:47:

In Reply to: Re: Interstitial Cystitis posted by Walt Stoll on April 27, 1998 at 09:28:38:

You're welcome again, Opa Walt.
And a further word from an English cousin who has/had interstitial-cell cystitis. She has been symptom free since she started taking the internal/oral version of DMSO, MSM daily, mixed in orange juice.
She is a retired English nursing Sister, specializing in surgery. She says she has been symptom-free since beginning the regime with MSM, but started it, together with external DMSO, to aid in treating non-rheumatic arthritis of her knees. She had been taking methotrexate, and it stopped being effective.
I hadn't heard of MSM until this came up, then I remembered Meriel's "bonus" of relief from interstitial-cell cystitis. Now I think I'll take a dose a day on general principals. I wish she'd get a computer and go "online"; there are so MANY things I'd like to ask her!
Thou knowest, dear Opa, that after 50 or so a lot of things and places ache. ;-)


Re: Interstitial Cystitis

Posted by Walt Stoll on April 30, 1998 at 10:36:37:

In Reply to: Re: Interstitial Cystitis posted by Oma Gretch on April 28, 1998 at 01:25:47:

Dear Oma,

"Growing older is not for sissies!"

"There is only one known solution to geting older."

Thanks, Opa Valt



1998: Apr

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