In Reply to: Re: Lupas - Results posted by Larry Pope on September 02, 1997 at 02:16:29:
Could you please send me on any information on Lupas that you have as my sister suffers from it and is really bad a lot of the time.....She also has diabetes.....I am writing now as she was taken into hospital yesterday and was put into intensive care as her immune system was so low and also she couldn't breed as she picked up some rare bug so if you could help in any way I would be delighted...
Thanks in advance Philip
Jan,
I'm sure you will get more concrete medical information from Dr. Stoll, but for what it's worth, my wife has been in a similar situation for getting close to a year now. She has found that she gets the most improvement when she can stick to a whole food diet. Dr. Stol will probably suggest you read both his book and Beth Loiselle's book about whole foods. We have read both and I would recommend both VERY HIGHLY.
Peter
Dear Jan,
ALL of the things you mentioned in your note are caused by the same basic mechanisms. Rather than your looking for more treatments, at this time, you need to be educating yourself about how that statement can be true. The quickest way for you to do that is for you to read a copy of my new book (link below).
THEN, bring any questions that information might trigger to us here on thie BB.
Walt
In Reply to: Re: HCV & Lupus / Treatment? posted by Bill on January 06, 1998 at 11:52:30:
O.K. "the Hepsters" are a non-profit Hepatitis-C group. We have a support group, do community education, patient advocacy, and recently started to do fund raising to assist patients, on a case to case basis, financially with medically related costs. All monies raised go to assisting patients with Hepatitis, there are "no administrative costs". We are located in Hawaii, on the island of Maui. Phone: 876-4365 That's who we are and what we do. ----------Maybe my problem trying to contact: Terry, Re:Hcv & Lupus is the computer here at work. I cannot click on the highlighted "Terry" to contact her. Being that hep-C is much like an autoimmune disease and Lupus being an autoimmune disease they do have many simularities. I have a very good friend that has lupus and when the two are compared it is remarkable. I would like very much to compare with others and not just one lupus case. My friend swears the comparison is too close to be a coincidence but I pretty much think,so far, that thay appear simular because of the effect they both have on your immune system. They both give you immune problems such as causing Fibromyalgia and/or just weakening the immune system in general.-----I believe this can cause missed diagnoses and (as in Terry's case, at first) the diagnosing of one and missing the dual diagnoses because of attributing all of the signs and symptoms to the one diagnoses. Which could easilly happen since the s&s match both diagnoses.---------Hep-C is much more common than most people think. Stats presently say 3.9 million cases in the U.S. and over 150,000 new diagnoses each year. I'm sure it is much higher than that because most people don't get tested for it unless they have good reason to. Must cases are discovered accidently, like trying to find out why someones liver enzymes are high and when nothing else shows up they "just happen to test for Hep-c". This is very common after a motor accident. The motor accident has nothing to do with the cause,of course, but it was the accident that brought the high liver enzymes to everyones attention. Then after awhile of trying to find out why the enzymes are high a "guess" shows Hep-C.--------a random study is needed of the general public to show everyone how prevelent Hep-C really is. Then people will wake up and pay attention. We hope to do this study, in the future, here in Hawaii. As it is now Hep-C is not a reportable disease and it should be. ALOHA-----Please anyone feel free to contact me with info or questions
In Reply to: Re: HCV & Lupus / Treatment? posted by Stephen Desmarais R.N. Hepsters President on January 06, 1998 at 14:42:55:
Dear Stephen,
Please see the note from Bill (my son) to me as of this date since it has to do with my poor choice of words about my response to you.
Also, I agree with your assessment of the hepatitis C problem. I would ADD to your statements that the current "liver function tests" are primitive in the extreme & are much better termed "liver death tests", They are the same ones that I learned in medical school 40 years ago. The way they work is: enzymes common to living liver cells are kept in those cells by the living functions of their cell membranes. IF the cell dies, the membrane is no longer capable of holding in their "innards" & so leak these enzymes into the blood where they are measured by the lab. ONLY when the cell is actually dead do these enzymes show up in the blood.
TRUE "liver function tests" have been available for many years for those physicians who know enough to order them. They all depend upon the actual function of liver cells WHILE THEY ARE STILL ALIVE.
Conventional medicine is SO simplistic that it says liver cells are perfectly normal so long as they are not dead. Any thinking person KNOWS that there is a continuum from perfect function through less than perfect all the way to the cell actually dying. It is the true liver function test that shows the sick liver cell BEFORE it dies. Call (800) 234-6825 for what these tests are AND the names of the closest physicians who know enough to order them.
Anyone with hepatitis C should read "Psychoimmunity & the Healing Process" , edited by Jason Serinus & published by Celestial Arts in 1986 AND contact Dr Cathcart about IV vitamin C: (415) 949-2822.
Thanks for your participation on this BB.
Walt
In Reply to: Re: HCV & Lupus / Treatment? posted by Stephen Desmarais R.N. Hepsters President on January 06, 1998 at 14:42:55:
Hi Stephen,
When I read your post mentioning that Terry had left an email address but you couldn't get through, I followed the thread back to see for myself. The email address Terry left was "T adamik@digiscape.com" Of course, email addresses aren't supposed to have spaces in them, so it looks like Terry made a typo. I would recommend trying to send mail to Tadamik and also to adamik (both @digiscape.com). If Terry left a last name (I forgot to check), you could try emailing "postmaster@digiscape.com" mentioning all the above and seeing if they can assist.
If you are using Windows 95 and Internet Explorer, you can see the email address under a mail link by right-clicking the link, then selecting "properties".
Bill
My wife has both systemic and discoid lupus and has known about it for a few years now. Both she and I and our two sons were wondering about any possible effective treatments.
Any information regarding either form of lupus would be greatly appreciated. I thank you in advance.
Terry Mizner
In Reply to: lupus treatment posted by Terry Mizner on January 08, 1998 at 12:39:29:
Dear Terry,
You need to start with a copy of my book (link below). With the concepts there, as well as the resources in the back, you will begin to have the bases for understanding anything else you might ask.
Please ask any further questions right here on the BB so others might benefit from the exchange.
Walt
In Reply to: lupus treatment posted by Terry Mizner on January 08, 1998 at 12:39:29:
I'm not certain where Dr. Stoll will stand on this comment, but I'm beginning to wonder if there is in fact a distinct desease such as lupus. Seems from what I've been reading that lupus may just be an advanced stage of combined LGS, food allergies, chemical sensitivities etc.
I'm sure it is more complicated than that, but so many people with a variety of similar ailments/symptoms report relief with the three basic actions most commonly discused here: whole food diet, skilled relaxation and exercise.
Peter
In Reply to: Re: Lupus posted by Walt Stoll on December 24, 1997 at 10:25:08:
LOOK INTO RAIN FOREST HERB CALL "UNA DE GATO" AND "GINKGO BILOBA". PERHAPS A MIX
CHECK WITH DOCTORS IF THIS MIGHT HELP.
NOTE: IS JUST AN IDEA FROM WHAT I KNOW ABOUT THE NATURE OF THIS HERBS.
PS: I AM NO DOCTOR
ID 42747
In Reply to: Re: lupus treatment posted by Peter Wray on January 11, 1998 at 19:06:16:
Dear Peter,
We MDs are taught that distinct pathological diagnoses (such as lupus) are the end all of what we are responsible for doing. We then tailor the treatment to the diagnosis.
Of course, the current disease-care crisis is a direct result of that kind of simplistic thinking. There IS a distinct pathological diagnosis called Lupus. However advanced thinkers, not primarily obsessed with maintaining the economic monopoly of conventional medical thinking, know that the pathological diagnosis depends upon the person's genetic susceptibility & not on the causes. That is why so many conditions will clear up just by giving the bodymind a chance to do its thing.
That is why I keep urging people to become an expert in the processes of their own "diagnosis". They are the ones best equipped to decide what to do.
Walt
Dear Cynthia,
What you need is a lot more information & another way of looking at things.
The simplest way for you to get started would be to read a copy of my new book (link below). I don't think the word lupus is mentioned in the book but it still is the way for you to get started. In the back are all the resources you would ever need to resolve this condition--which will only get worse as you get older UNLESS you change your direction. How do you know which way to turn without knowledge?
Once you realize that the door is opened a crack, with the information in my book, I would call your attention to one reference in the back that was written about you: "Mind as Healer, Mind as Slayer" by Dr Pelletier. Any bookstore & library has copies.
THEN, if you have more questions, write again. You are suffering needlessly.
Walt
last night I got a scare. After a disturbing phone call I went to a friends house to find him almost unconcious. I checked airway, no bleeding, and pulse. He was "out of it".I thought he might have a heart problem or blood sugar problem. He refused a ambulance or the hospital, but I will not allow this again if I see him in this condition. After about ten minutes he seemed ok but weak. Tea with sugar seemed to help. I asked him what was going on, drink, drugs or medical condition. He told me he had Lupas. He takes a perscription drug for this. He had been to the hospital and "checked out" OK a few days before. He says he is aware of his condition. After an hour he was OK but weak. It was evident that he didn't need me grilling him with questions, but rest. What is the best way to help my friend should I find him in this condition again? Do you think that this syntom is common in lupas,passing out,confusion,weakness? he is 45 male. You see we are in Brasil,we try to help our expat friends. Your advice would be helpful.
In Reply to: friend and lupas posted by Douglas on January 19, 1998 at 06:22:20:
Dear Douglas,
I have never heard of lupus causing symptoms like this. I would be more suspicious of diabetes, transient ischemic attack or coronary problems. He needs a good total workup to find out. This is not caused by lupus even though he may well have it.
One of the terrible treatments for lupus is high doses of cortisone. If he has been on THAT for a long time (as much as a year) he could be going into shock from a lack of his own adrenals producing cortisone.
There are too many things this can be to tell you much from here. He needs help UNLESS he would sooner die than go to the doc. THEN, he has to make that choice & you have to love him, as he is, so long as he is here.
Walt
In Reply to: Re: Lupas - Results posted by Walt Stoll on November 02, 1997 at 11:41:45:
yes......i was just diagnosed with lupas.......i am having a very hard time trying to figure out exactly what it is. I am currently researching as much as i can....but i keep coming to dead ends.
if there is any information out there to help me on my quest could you please fill me in on some information?
In Reply to: Re: Lupas - Results posted by Jay Johnson on November 02, 1997 at 02:09:02:
I am in the same boat, my girlfriend is suffering the same problem and no doctor has been able to help. If you get any info on this please e-mail me.
Thanks
In Reply to: Re: Lupas - Results posted by regina lowery on January 27, 1998 at 22:01:52:
Dear Regina,
What you need most is knowledge. Your note says you are seeking it. The first thing you will need is to learn the correct spelling: Lupus Erythematosis (systemic or superficial).
Next, the same things cause lupus as cause all forms of autoimmunological conditions. There is now substantial information showing that the bodymind's response to the same causes is determined on a genetic basis. In your case it is lupus, the exact same causes in someone else might cause irritable bowel syndrome, rheumatoid arthritis, psoriasis, mental depression, hypertension, etc.
You really need to start down the path of what we are learning about all this. My book is a perfect introductory tool in this direction (link below). Once you get on the path, the last 20% of the book contains the resources you would need to fare down that path.
Once you have this information under your belt, if you still have more questions, write again. Doing our communications in public will help others with the same questions.
Walt
In Reply to: Re: Lupas - Results posted by Danny Savic on January 29, 1998 at 02:36:49:
Dear Danny,
There IS no effective treatment for lupus from a conventional paradigm. Anyone interested in taking the time to learn enough to help themselves have a lot of work ahead of them. The one thing I CAN tell you at this time is that every year that goes by the individuial will have less energy AND have to work a lot harder to reverse the process. Until one is dead, it is never too late to help oneself with this problem.
All the references anyone would need are in the back of my book (link below). It was written the way it was to help the person just learning to figure out what they need to learn & then giving them the resources to learn more.
Unfortunately, YOU cannot do this for HER. SHE has to be the one interested and the one putting in the work. Without that, your best bet is to learn for yourself & love her as she is.
Walt
In Reply to: Re: HCV & Lupus / Treatment? posted by Walt Stoll on January 07, 1998 at 13:30:18:
my name is Gregory Lane and i have hvc i get tied my bones ache and my testical sweell up from time to time and i get nausea is that a sign. are these the systom