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Legg-Calve-Perthes Disease

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Legg-Calve-Perthes Disease

Posted by
Sheena on April 03, 2001 at 00:41:31:

My son was recently diagnosed with Legg-Calve-Perthes Disease. What do you know about this disorder. He is only 2 yrs old. Everything I have read says it happens in boys from age 4-10yrs old. Will this cause long term problems later in life? And also I too have had a pilanidal cyst removed 3X, 2 of those within a month of each other, and I still have total discomfort. What should I look for on my son to see if he has the "dimple", or where can I go for a picture, my peditrician has never said anything about whether or not he has one. I will tell other people who have this or children with this, I had fell on my butt playing basketball on a concrete court and a year or so later I had a extremely bad flare up. I was 16yrs old, I had it "removed" (3 times), after coming in the Navy, 2 of those the left the incision open, the third they made a good attempt at stitching it closed, but after 4days I had to have the stitches removed and go back to the packing type of healing. The scar tissue is horrid and very easily irritated, I probably should have it looked at again. But I'm in no hurry to have a second anus made for the 4th time.
Sheena



Re: Legg-Calve-Perthes Disease

Posted by Jen B on April 03, 2001 at 09:32:14:

In Reply to: Legg-Calve-Perthes Disease posted by Sheena on April 03, 2001 at 00:41:31:

Hi Sheena,
My husband, now in his 50's had L-C-P when he was 2 years old. Back then, he says, they called it "Perthe's Disease". Anyway, he wore a brace from age 2 to 4, and his hip healed perfectly. The brace takes the weight off the hip joint, allowing circulation and healing. He's always been very active, and has never had a problem with it since. There is a lot of info on the web (look up orthopedic sites) about treatments... a whole range, from doing nothing (I guess it heals fine in some cases with no intervention) to braces, surgery, etc. Good luck!



Re: Legg-Calve-Perthes Disease (Archive in pregnancy.)

Posted by Walt Stoll on April 05, 2001 at 07:44:01:

In Reply to: Re: Legg-Calve-Perthes Disease posted by Jen B on April 03, 2001 at 09:32:14:

Hi, Sheena.

Listen to Jen (Thanks, Jen!) This condition is best treated conventionally. This 'site is about how to prevent this congenital condition.

So far as your pilonidal cyst problem is concerned, IF you had known the information on this 'site BEFORE you had your first surgery, you MIGHT have opted to live with it rather than take the chance of what happened (At least you had a 50% chance of a cure.) Unfortunately you are one of the about 30% who actually get worse from the surgery and there is little you can do about that now.

The only suggestion I would have is to practice a serious wellness lifestyle. Although that will not likely resolve the problem, it will make your flareups less severe and further apart. For now, learn how to do the hot compresses for flareups and when to use them.

Let us know how you do.

Walt

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