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pilonidal cysts

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pilonidal cysts

Posted by
Chris on June 15, 2002 at 13:53:52:

I have had one, indented cyst since I was born off to the center of my tailbone. I am 39 yrs.old, 2 children, active, 125 lbs, exercise, lift weights. A few months back, I felt a little strange in that area below my cyst, then 1 week ago, I developed another one about 3/4inch below my old one. This one is smack in the middle before the cleft of the buttocks. The old one has never given my any trouble, but this one is driving me nuts. It has the sensation of numbness, feels like someone set an icecube on it and let it freeze, some pain, have a hard time sitting and finding a comfortable spot. Feels like I am sitting on a growth or something!! I can touch it, push on it, massage it and I have absolutely no pain when doing so. Bending over to pick something off the floor causes a sensation of pulling pain in that area. I was so miserable that I called my surgeon, and he immediately called in a antibiotic for me, which made a world of difference!! I feel much better, but I still do not feel right down there. He said to avoid the stationary bike (which I would ride 3 times a week, 3 miles per time). I never felt pain in that area when I was riding it either. Some of the other things that he mentioned, I never do, so I won't worry about that. He said to avoid sitting for prolonged periods of time, and if I want, to sit in a sitz bath a few times a day. I have NO drainage, NO redness, NO growth on the outside like I have read about on your archives, I just have 2 dents (ruts) that look like deep dimples on someones face when they are smiling! Thats the best I could describe it. I am otherwise pretty healthy, only for GERD, and on my upper arms I have keratosis pilaris that I keep under control with salacylic acid gel applied at nighttime. Is there any advice that you could give me on this condition? I have read your archives on this, but the majority of the letters are from people that have drainage, etc. Help me in any way you can, it is much appreciated. I never found out the true name of this until last month. All these years and I never showed my tailbone to anyone!! Embarrased I guess. Thank you...........chris



Re: pilonidal cysts

Posted by EML on June 15, 2002 at 22:37:42:

In Reply to: pilonidal cysts posted by Chris on June 15, 2002 at 13:53:52:

Hello, Chris!

Welcome to the land of pilonidal stuff...

Sounds like your cyst isn't really giving you much trouble. In that case, you could probably take on the conservative (live-with-it) approach. This includes keeping the hair away, if any resides down yonder, keeping the area very clean and dry, etc. Try (like dr. said) to avoid sitting too long and putting pressure on it.

On the other hand, if it really starts giving you fits, then you could take the surgical route that so many p/c sufferers, including myself, have taken.

Good luck, and don't feel embarrassed! I, too, went that route, and I wish I had it dealt with sooner than I did.

Mine never drained, either, but it itched and felt sore. It never got big on the outside, either, but this surely would have caused me alarm!

E

I think being embarrassed about these things is one of the reasons people don't seek medical attention until they're in dire straits.

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Re: pilonidal cysts

Posted by Walt Stoll on June 16, 2002 at 08:13:42:

In Reply to: pilonidal cysts posted by Chris on June 15, 2002 at 13:53:52:

Hi, Chris.

Have you been doing situps?

It sounds like you may still save yourself by using a donut whenaver you are doing anything that might put pressure on this area.

The information you need is in the archives and will take you some time to dig out.

Let us know what you learn.

Walt

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Re: pilonidal cysts

Posted by
Chris on June 16, 2002 at 09:21:24:

In Reply to: pilonidal cysts posted by Chris on June 15, 2002 at 13:53:52:

Dr. Stoll, I got your message, but I was wondering, you asked if I was doing sit-ups? Is that supposed to help? If it is, I will do tons of them. When I sit, I shift myself from the left side to right (hips), I try not to sit right on it. Is that a good idea? I have a donut, but when I use it, it seems to rub up right against my tailbone? My exercise is walking (fast paced-4 times week), lifting weights, and chasing after a 2 yr. old. The surgeon said to stay away from the stationary bike for at least another week. Can I go back to riding it, do you think? Also, does chiropractic care help. I have been going to a chiro for 1 1/2. I only go now for maintenance visits about every 3-4 months. Was having trouble with my neck and right hip. Feel great now? Please let me know? Much appreciated. You do a wonderful service to people. It's nice to have you on the net! Thanks....chris



Re: pilonidal cysts

Posted by Walt Stoll on June 17, 2002 at 09:20:23:

In Reply to: Re: pilonidal cysts posted by Chris on June 16, 2002 at 09:21:24:

Thanks, Chris.

The reason I asked about the situps is because if you were doing them without a donut it could be a direct cause of your flareup!

Walt

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Re: pilonidal cysts

Posted by
wayne on June 17, 2002 at 10:42:24:

In Reply to: pilonidal cysts posted by Chris on June 15, 2002 at 13:53:52:

Chris, you might want to check out the pilonidal sinus self-help page: http://www.paxcredo.net/pilo1.html

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Re: pilonidal cysts

Posted by just another suffer on June 17, 2002 at 11:31:04:

In Reply to: pilonidal cysts posted by Chris on June 15, 2002 at 13:53:52:

Well it's strange how did you get rid of the first one? If the first one wasn't removed by surgery then my suggestion is that it is not a new one just your old one moving around and growing.

Cysts act different for everyone but the basics are the same you can be open and draining or closed, if it doesn't open that's when if infected it gets swollen and very sore and why alot of people have to have them lanced so open them up to drain. If yours opens then draining is alot easier. If yours is not painful it could be either you are not infected or the infection and cyst has room to grow, the swollen cysts usually hurts when it's infected and has run out of room so to speak. But I'm no doctor and I'm sure I haven't heard of every situation so this is just my thoughts.

The pressure on the tailbone is very very important it's the pressure that can cause infections soreness etc.. Hair and cleanilness is important also but pressure is the most important. Sit on a tush cush much more comfortable than a donut and easier to use. For bike riding get a special seat that splits in the middle and will remove pressure from the tailbone, the seats are out there you just have to search for them. That's way sit-ups would be bad unless you can think of a way to remove pressure off the tailbone.

Also another site to help learn about the cyst and things you can do is www.pilonidal.org.

Good luck
just another suffer



Re: pilonidal cysts

Posted by Walt Stoll on June 18, 2002 at 07:33:29:

In Reply to: Re: pilonidal cysts posted by just another suffer on June 17, 2002 at 11:31:04:

Thanks, Just.

I did not know that there was a bike seat that was split in the middle.

Live and learn.

Namaste`

Walt

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Re: pilonidal cysts

Posted by
Chris on June 19, 2002 at 08:31:57:

In Reply to: pilonidal cysts posted by Chris on June 15, 2002 at 13:53:52:

Hi Walt.........Just wanted to drop you a line to tell you that I am feeling much better. I have been sitting (when I get the time to sit) on a donut, and I have been doing the hot compresses 4 times a day. Also, I wash the area 3 times a day with Dial soap and a terry washcloth. Anything else that I should be doing to ward the infection from coming back again? To keep this area dry (especially from doing activities that make you sweat), can I put Johnson's baby cornstarch or plain cornstarch on the "cleft" to keep this area dry???? I don't want to clog the pores. Any feedback from fellow sufferers would be greatly appreciated. I am glad that I am not the only one out there with this miserable problem!!!! Also, someone told me to use hair remover every 2 weeks? I am not hairy at all, but should I do this? Thank you for your time, and answers.........Chris



Re: pilonidal cysts (Archive.)

Posted by Walt Stoll on June 20, 2002 at 07:49:08:

In Reply to: Re: pilonidal cysts posted by Chris on June 19, 2002 at 08:31:57:

Hi, Chris.

The hair remover may or may not help. The nidi that cause this can easily be in crosswise. Those that ARE will cause ingrown hairs in that area. Since these are microscopic, the only way to avoid this happening is to use hair remover at least every 2 weeks.

I am not much on cornstarch since I tend to believe that it holds moisture in the area rather than removing it.

If I had this , I would be sure to be taking at least 2000 milligrams of omega 3s twice a day to make the sebum more runny. That, will help keep any nidi from becoming blocked.

I do not know what else you can do.

Walt

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