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pilonidal cyst

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pilonidal cyst

Posted by
sandra on August 19, 2002 at 22:24:38:

my daughter is 27 in march i went with her to the doctors office for outpatient surgery which i thought would be very routine. after the surgery her doctor told us everything went fine and she should recover after several weeks. it has been 6mos. we are absolutely at our wits end. first of all you hate to see someone you love going throudh this. she has been going for lansings, stitches, and now another surgery is planned because this is not healing. i had never heard of anything lke this until i found your website. i certainely would have discouraged her from having this surgery had i known the complications. there is still blood secreating from this open wound and we are very worried about the thought of a second surgery. any advice would be greatly appreciated. thank you.



Re: pilonidal cyst

Posted by just another suffer on August 20, 2002 at 11:04:46:

In Reply to: pilonidal cyst posted by sandra on August 19, 2002 at 22:24:38:

First off what kind of doctor are you seeing? The best surgeon's to use is a Colon/Rectal surgeon. They seem to have more experiance and knowledge about the Pilonidal cyst.

Second I'm assuming your daughter had the open method surgeon where they removed the cyst and left the wound opened to heal from the inside out. It should have involved packing twice a day. If this is what she had 6mons with still some bleeding is not totally adnormal. Some people take longer to heal. Before going in for another surgery first try a wound healing center. They specialize in healing open wounds. The only reason your daughter would need another surgery is if not all the cyst was removed.

These suggestions would be a good place to start. Get another doctor, Colon/Rectal and make sure they know how to handle a Pilonidal cyst.

Another site to try that has alot of information on surgery options, after surgery care, long term care is www.pilonidal.org. It was for me along with this site a very helpful source of information. I was able to get a good doctor for my second surgery on the Pilonidal and so far so good.

Good luck
just another suffer



Re: pilonidal cyst (Best surgeon?) Archive.

Posted by Walt Stoll on August 20, 2002 at 12:03:55:

In Reply to: Re: pilonidal cyst posted by just another suffer on August 20, 2002 at 11:04:46:

Hi, just.

We still agree to disagree on which kind of surgical specialist should to this surgery.

Colorectal surgery is a totally different kind of surgery from what is required for a pilonidal problem.

Walt



Re: pilonidal cyst (Best surgeon?) Archive. Walt's comment

Posted by Pi-Annie on August 20, 2002 at 19:34:15:

In Reply to: Re: pilonidal cyst (Best surgeon?) Archive. posted by Walt Stoll on August 20, 2002 at 12:03:55:

Walt - I agree with you, but the C/R surgeons seem to have a corner on this market (i.e, most experience). What/who would you suggest if you have to do the surgery???



Re: I didn't know we disagreed?

Posted by just another suffer on August 21, 2002 at 10:35:23:

In Reply to: Re: pilonidal cyst (Best surgeon?) Archive. posted by Walt Stoll on August 20, 2002 at 12:03:55:

To be honest I've used a general surgeon for my June 19th surgery. I was very impressed with her. I did test her so to speak by learning all I could about the Pilonidal and care. So maybe what is more important is to know how to find a good doctor whether general or C/R.

I found her by calling a Colon/Rectal office and the nurse advise me she was more knowledge about it than the C/R doctor they had was. It was a group of doctors sharing an office.

just another suffer



Re: pilonidal cyst (Best surgeon?) Archive. Walt's comment

Posted by Walt Stoll on August 21, 2002 at 10:44:12:

In Reply to: Re: pilonidal cyst (Best surgeon?) Archive. Walt's comment posted by Pi-Annie on August 20, 2002 at 19:34:15:

Hi, Pi-Annie.

I would see a general surgeon who has done a number of these.

The only connection between the colon and rectum and a pilonidal problem is that they just happen to be in the same part of the body. This is like saying that an oral surgeon should do brain surgery because they were both in the head!

Actually, a pilonidal problem is more closely related to a neurosurgeon although no neurosurgeon would want to do it.

Walt



Walt...

Posted by EMl on August 21, 2002 at 12:34:04:

In Reply to: Re: pilonidal cyst (Best surgeon?) Archive. posted by Walt Stoll on August 20, 2002 at 12:03:55:

A colorectal surgeon is 'the' specialist that deals with pilonidal cysts. It is the only doctor's office where patients can expect to find brochures on the subject.

General surgeons, of course, can be used. My family doctor referred me to a colorectal surgeon. Even though pilonidal disease doesn't involve the colon or rectum, I believe the reason these c/r surgeons are the 'main' ones for the removal of the cyst are because these cysts are practically on the buttocks.

I have seen some people' posts where a dermatologist was consulted, and I, too, would say, "Well, couldn't this ailment be classified as a 'skin' problem?"

People will discover that most people who've discussed the subject of pilonidal disease were given the colorectal surgeon route because that is part of their specialty.

If you go to the fascrs.org website, you will see Pilonidal Disease listed among the many ailments that colorectal surgeons deal with. Many years ago, a general surgeon was probably advised for the job, before all of these specialists came along. That is why God put them, along with family doctors, on the earth. They specialize in certain things and will generally have more experience at dealing with them.

I am not trying to argue with anyone here; just giving out facts that I've learned over the past several months.

If a general surgeon has done his/her homework and has performed a multitude of pilonidal cystectomies, then I would say, along with the fact that the patient felt like they were in good hands, then, by all means, go to that doctor and get it dealt with. A colorectal surgeon will often have a different 'take' on the subject, though.

Aftercare in these things is of utmost importance, as well. Can't just 'cut 'em and leave 'em,' so to speak. These things have to heal properly, or else the patient is going to find themselves either back on the operating table or forever nursing an open hole on their butts and/or backsides and get quite frustrated about it.

Everyone heals at different rates, too. Look at Yours Truly. It's been around 5 months, and I just got the green light yesterday. I feel that proper nutrition/diet, etc. play a key role in the wound healing. It also is important to keep the area free of hair. For those folks who are blessed with NADA hair in that area, well, then I don't know why a cyst might form. Nonetheless, most people have hair in that part of their bodies, and it's a culprit in the pilonidal cyst scenario...

Take care.

Follow Ups:


Re: pilonidal cyst (Best surgeon?) Archive. Walt's comment

Posted by EML on August 21, 2002 at 12:38:32:

In Reply to: Re: pilonidal cyst (Best surgeon?) Archive. Walt's comment posted by Walt Stoll on August 21, 2002 at 10:44:12:

A woman who makes appts. (made them for me, that is) mentioned a relative of hers that had a p. cyst who went to a neurosurgeon. She talked like the neuro doctor 'did' perform a cystectomy but had trouble later on and then went to a colorectal surgeon and had 'better' results.

Had to laugh at the comment cause when you look at the big picture, the butt is a tad bit far from the brain...LOL

Ah, the mysteries of pilonidal disease...



Re: I didn't know we disagreed?

Posted by Walt Stoll on August 22, 2002 at 08:18:25:

In Reply to: Re: I didn't know we disagreed? posted by just another suffer on August 21, 2002 at 10:35:23:

Thanks, just.

:o)

Namaste`

Walt

Follow Ups:


Re: pilonidal cyst (Best surgeon?) Archive. Walt's comment

Posted by Walt Stoll on August 22, 2002 at 09:07:38:

In Reply to: Re: pilonidal cyst (Best surgeon?) Archive. Walt's comment posted by EML on August 21, 2002 at 12:38:32:

Thanks, EML.

If you have read the embryological basis for a pilonidal problem you know it is a cousin of "spina bifida"--a REAL neurological problem. Same cause, different degree.

Walt



Re: pilonidal cyst (Best surgeon?) Archive. Walt's comment

Posted by EML on August 22, 2002 at 18:19:53:

In Reply to: Re: pilonidal cyst (Best surgeon?) Archive. Walt's comment posted by Walt Stoll on August 22, 2002 at 09:07:38:

No, I've not read that, but why do colon and rectal surgeons list pilonidal disease on their website as being one of the ailments that they treat?

I would think that a 'butt' problem would require a 'butt doctor' (aka colon and rectal specialist) to be on the case.

I'm not disagreeing that a neurosurgeon 'couldn't be the person for the job, but I've not heard of any performing a pilonidal cystectomy...

Take care,

E



pilonidal cyst/spina bifida: (Best surgeon?) Archive. Walt's comment

Posted by Walt Stoll on August 23, 2002 at 11:14:30:

In Reply to: Re: pilonidal cyst (Best surgeon?) Archive. Walt's comment posted by EML on August 22, 2002 at 18:19:53:

Thanks,EML.

Sorry for the misunderstanding. I said that a neurosurgeon would be more embryologically suited for this surgery not that they would ever do it.

It all goes back to understanding the embryological development that produces spina bifida and a pilonidal problem. Until one understands that they will continue to ask questions that seem transparent to me.

I predict we will all find that as spina bifida becomes less prevalent, due to finally understanding the folic acid connection, we will also see pilonidal problems nearly disappear.

Walt



Boy, I hope mine STAYS disappeared!! nmi

Posted by EML on August 23, 2002 at 21:22:24:

In Reply to: pilonidal cyst/spina bifida: (Best surgeon?) Archive. Walt's comment posted by Walt Stoll on August 23, 2002 at 11:14:30:

0=)

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